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Keith Oliver was diagnosed with Alzheimer's in 2010, and has since become a leading activist for dementia care, and an international speaker. Telling his story through a diary format, this book gives an unparalleled insight into what day-to-day life with dementia is like, and how he continued to live a full life after diagnosis.
Book Synopsis Dear Alzheimer's by : Keith Oliver
Download or read book Dear Alzheimer's written by Keith Oliver and published by Jessica Kingsley Publishers. This book was released on 2019-04-18 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keith Oliver was diagnosed with Alzheimer's in 2010, and has since become a leading activist for dementia care, and an international speaker. Telling his story through a diary format, this book gives an unparalleled insight into what day-to-day life with dementia is like, and how he continued to live a full life after diagnosis.
At the time this book was written, the youngest person recorded with Alzheimers Disease was 28 years old. Since I learned about Alzheimers with my maternal grandmother suffering from and succumbing to the disease in the 1980s, the ages of Alzheimers patients have been steadily becoming younger and younger. In my mothers memory care unit was an educator who died of early onset Alzheimers at the age of 53. There is a new diagnosis of Alzheimers every 67 seconds and it is estimated that one in every three people in the United States will have Alzheimers by the age of 85. This disease lasts from 2 - 25 years. If this trend continues then every family in this country will be visited by Alzheimers and the affects on caregivers will also affect this nation. This book is both a personal story of a decade-long journey of caregiving as well as a call to arms for funding and research of this terminal disease.
Book Synopsis Dear Clueless by : Sandra Savell
Download or read book Dear Clueless written by Sandra Savell and published by AuthorHouse. This book was released on 2015-01-06 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the time this book was written, the youngest person recorded with Alzheimers Disease was 28 years old. Since I learned about Alzheimers with my maternal grandmother suffering from and succumbing to the disease in the 1980s, the ages of Alzheimers patients have been steadily becoming younger and younger. In my mothers memory care unit was an educator who died of early onset Alzheimers at the age of 53. There is a new diagnosis of Alzheimers every 67 seconds and it is estimated that one in every three people in the United States will have Alzheimers by the age of 85. This disease lasts from 2 - 25 years. If this trend continues then every family in this country will be visited by Alzheimers and the affects on caregivers will also affect this nation. This book is both a personal story of a decade-long journey of caregiving as well as a call to arms for funding and research of this terminal disease.
"This is a lovely book about a devastating problem-Alzheimer's. The pages are like poetry and the photos saymore than words. Anyone who has cared for a loved onewith Alzheimer's will relate to and appreciate every one ofthese pages." -Former Supreme Court Justice Sandra Day O'Connor "There is a sweetness in the light Judith Fox finds thatsoftens a brutally unique and all too common experience.Ms. Fox has made the story about love and devotion when itmight easily be expected to be about a more tragic and angryvision. But the tough stuff is lurking around every corner..." -Arthur Ollman, Director, School of Art, Design,and Art History at San Diego State University Three years into their marriage, Judith Fox's husband, Dr.Edmund Ackell, was diagnosed with Alzheimer's Disease.Over the course of the next ten years, Fox watched as theman who used to perform surgery, fly planes, and rununiversities, forgot how to turn on the coffee maker, placea phone call, or remember what his wife had told him twominutes earlier. More than 5 million Americans have Alzheimer's. A poignantand beautiful portrait of a man with Alzheimer's as seenthrough the loving lens and words of his wife and care-partner,I StillDo: Loving and Living With Alzheimer's puts ahuman face in front of the statistics, exploring the diseasethrough Fox's intimate photographs and poetic writing.While the details of I Still Do are personal and unique, thisdeeply candid story of illness, aging, partnership, and lovingis universal.
Book Synopsis I Still Do by : Judith Fox
Download or read book I Still Do written by Judith Fox and published by powerHouse Books. This book was released on 2009-09-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This is a lovely book about a devastating problem-Alzheimer's. The pages are like poetry and the photos saymore than words. Anyone who has cared for a loved onewith Alzheimer's will relate to and appreciate every one ofthese pages." -Former Supreme Court Justice Sandra Day O'Connor "There is a sweetness in the light Judith Fox finds thatsoftens a brutally unique and all too common experience.Ms. Fox has made the story about love and devotion when itmight easily be expected to be about a more tragic and angryvision. But the tough stuff is lurking around every corner..." -Arthur Ollman, Director, School of Art, Design,and Art History at San Diego State University Three years into their marriage, Judith Fox's husband, Dr.Edmund Ackell, was diagnosed with Alzheimer's Disease.Over the course of the next ten years, Fox watched as theman who used to perform surgery, fly planes, and rununiversities, forgot how to turn on the coffee maker, placea phone call, or remember what his wife had told him twominutes earlier. More than 5 million Americans have Alzheimer's. A poignantand beautiful portrait of a man with Alzheimer's as seenthrough the loving lens and words of his wife and care-partner,I StillDo: Loving and Living With Alzheimer's puts ahuman face in front of the statistics, exploring the diseasethrough Fox's intimate photographs and poetic writing.While the details of I Still Do are personal and unique, thisdeeply candid story of illness, aging, partnership, and lovingis universal.
When the author's wife, Judith James, was diagnosed with younger-onset Alzheimer's disease in her sixty-first year, they'd been a couple for close to four decades and together had constructed an enviable life. Her diagnosis threatened to up-end that life by casting them adrift in a territory for which they had no map, no compass, and no foreknowledge. Slowly, by trying and failing and trying again, they would navigate that territory, discovering the scale and scope of the challenges her disease presented and, with love and commitment, figuring out how to hold on to the best quality of life possible.In Dear Judy: A Love Story Rewritten by Alzheimer's, the author reconstructs, honestly and with great sensitivity, their shared experience through the multiple advancing stages of the disease, their accommodation of the successive and accelerating losses and the accompanying grief, and the eventual acceptance that allowed light to dissolve the darkness into which their relationship had been unexpectedly cast. We are privy to some of the most intimate moments in a marriage upended by this disease and by the curve balls it would throw, so often when the author and his wife least expected them. In this unflinching meditation and reflection, we learn that life can indeed be enriched by adversity, and that love can, against strong odds, expand, deepen and ultimately reach its fulfillment.
Book Synopsis Dear Judy by : Michael F. James
Download or read book Dear Judy written by Michael F. James and published by . This book was released on 2023-03-28 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the author's wife, Judith James, was diagnosed with younger-onset Alzheimer's disease in her sixty-first year, they'd been a couple for close to four decades and together had constructed an enviable life. Her diagnosis threatened to up-end that life by casting them adrift in a territory for which they had no map, no compass, and no foreknowledge. Slowly, by trying and failing and trying again, they would navigate that territory, discovering the scale and scope of the challenges her disease presented and, with love and commitment, figuring out how to hold on to the best quality of life possible.In Dear Judy: A Love Story Rewritten by Alzheimer's, the author reconstructs, honestly and with great sensitivity, their shared experience through the multiple advancing stages of the disease, their accommodation of the successive and accelerating losses and the accompanying grief, and the eventual acceptance that allowed light to dissolve the darkness into which their relationship had been unexpectedly cast. We are privy to some of the most intimate moments in a marriage upended by this disease and by the curve balls it would throw, so often when the author and his wife least expected them. In this unflinching meditation and reflection, we learn that life can indeed be enriched by adversity, and that love can, against strong odds, expand, deepen and ultimately reach its fulfillment.
Imagine being lost, then found, then lost again. Imagine being giddy in love with a man who is slipping away from you bit by bit. This is the heartbreak that I endured. This is the story of my journey as a caregiver and the route I chose to get my husband and me safely to the end. Research shows that more than half a million Canadians have Alzheimer's disease or related dementia. Those suffering from it lose their memory and ability to think properly. What was more frightening, for me, was the profound changes to Tony's mood and behaviour. As Alzheimer's disease heaped indignity after indignity upon him, I struggled to maintain my equilibrium. My natural optimism took a pounding. I was often crushed, often weepy. Sometimes I gathered my dog and my car keys and was ready to bolt. If you are a caregiver, you will see yourself in this book. If you have just learned that your partner, parent or other loved one has Alzheimer's disease, you will find insight and hope.
Book Synopsis Dear Braveheart by : Sheridan Rondeau
Download or read book Dear Braveheart written by Sheridan Rondeau and published by . This book was released on 2022-03-22 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Imagine being lost, then found, then lost again. Imagine being giddy in love with a man who is slipping away from you bit by bit. This is the heartbreak that I endured. This is the story of my journey as a caregiver and the route I chose to get my husband and me safely to the end. Research shows that more than half a million Canadians have Alzheimer's disease or related dementia. Those suffering from it lose their memory and ability to think properly. What was more frightening, for me, was the profound changes to Tony's mood and behaviour. As Alzheimer's disease heaped indignity after indignity upon him, I struggled to maintain my equilibrium. My natural optimism took a pounding. I was often crushed, often weepy. Sometimes I gathered my dog and my car keys and was ready to bolt. If you are a caregiver, you will see yourself in this book. If you have just learned that your partner, parent or other loved one has Alzheimer's disease, you will find insight and hope.
CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.
Book Synopsis Jan's Story by : Barry Rex Petersen
Download or read book Jan's Story written by Barry Rex Petersen and published by Behler Publications. This book was released on 2010 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.
Winner of the Michael Ramsay Prize 2016 Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it. Here, John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: • Who am I when I’ve forgotten who I am? • What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological and pastoral responses to dementia and forgetfulness, Swinton’s Dementia redefines dementia in light of the transformative counter story that is the gospel.
Book Synopsis Dementia by : John Swinton
Download or read book Dementia written by John Swinton and published by SCM Press. This book was released on 2017-01-31 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the Michael Ramsay Prize 2016 Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it. Here, John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: • Who am I when I’ve forgotten who I am? • What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological and pastoral responses to dementia and forgetfulness, Swinton’s Dementia redefines dementia in light of the transformative counter story that is the gospel.
A poet's chronology of caregiving for her spouse who struggled with Alzheimer's. An intimate recording of how the disease acts as a slow moving wedge to separate us from the ones we love. A powerful testament to all who love, care give and ultimately say goodbye.
Book Synopsis Dear Alzheimer's by : Esther Altshul Helfgott
Download or read book Dear Alzheimer's written by Esther Altshul Helfgott and published by Createspace Independent Publishing Platform. This book was released on 2013-07-04 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A poet's chronology of caregiving for her spouse who struggled with Alzheimer's. An intimate recording of how the disease acts as a slow moving wedge to separate us from the ones we love. A powerful testament to all who love, care give and ultimately say goodbye.
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Book Synopsis On Vanishing by : Lynn Casteel Harper
Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.
Book Synopsis Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's by : Patti Davis
Download or read book Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's written by Patti Davis and published by Liveright Publishing. This book was released on 2021-09-28 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.
