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Written by a mother whose son has fragile X syndrome and autism this book is about her reaction and coping strategies in relating to her son. She openly discusses working through her grief, anger and fears that her son's diagnosis brought and reinforces that it is possible to survive and find joy in parenting a special needs child.
Book Synopsis Fragile X, Fragile Hope by : Elizabeth Griffin
Download or read book Fragile X, Fragile Hope written by Elizabeth Griffin and published by YWAM Publishing. This book was released on 2004 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by a mother whose son has fragile X syndrome and autism this book is about her reaction and coping strategies in relating to her son. She openly discusses working through her grief, anger and fears that her son's diagnosis brought and reinforces that it is possible to survive and find joy in parenting a special needs child.
We are living in challenging times. And it is easy to escape, pine for the “good old days,” or unrealistically dream our way into the future. Instead, we are invited, in this book, to face our troubled world, to identify our inner struggles of faith, and to voice our anxieties and pain. And most importantly we are invited to wrestle with the God who so often seems absent. Living with a fragile hope, we are called by the gospel to nurture an inner life that responds with faith and courage to the brokenness of our world and the woundedness of our inner being.
Book Synopsis A Fragile Hope by : Charles R. Ringma
Download or read book A Fragile Hope written by Charles R. Ringma and published by Wipf and Stock Publishers. This book was released on 2021-10-12 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: We are living in challenging times. And it is easy to escape, pine for the “good old days,” or unrealistically dream our way into the future. Instead, we are invited, in this book, to face our troubled world, to identify our inner struggles of faith, and to voice our anxieties and pain. And most importantly we are invited to wrestle with the God who so often seems absent. Living with a fragile hope, we are called by the gospel to nurture an inner life that responds with faith and courage to the brokenness of our world and the woundedness of our inner being.
A tiny mutation on the X chromosome can shape a family’s history. Passed down from a “carrier” parent to a child, fragile X syndrome is the most common inherited cause of intellectual disability and autism. Beyond that—and a rarity among genetic disorders—some fragile X carriers not only transmit the mutation but also experience related conditions themselves. In such cases, carriers can have tremors, infertility, and psychiatric disorders that complicate raising children with fragile X syndrome—and all too often, they suffer in silence. The Carriers investigates this common but still little-known genetic condition and its life-altering consequences. Anne Skomorowsky reveals how this disorder afflicts families across generations, telling the stories of the mothers and grandparents of fragile X patients and considering how genes interact with family dynamics. She interweaves the personal narratives and family histories of the people affected by fragile X disorders with clear and accessible explanations of the science behind them. Skomorowsky unpacks the latest research on the fragile X mutation and explores the history of its discovery. She highlights the roles of women as carriers, caregivers, and researchers who have made astonishing scientific breakthroughs over the last three decades. The Carriers is an essential book for fragile X families, including those just learning they are carriers, and for all readers interested in the complexities of heredity, the ethical dilemmas of genetic medicine, and the relationship between genes and personality.
Book Synopsis The Carriers by : Anne Skomorowsky
Download or read book The Carriers written by Anne Skomorowsky and published by Columbia University Press. This book was released on 2022-05-03 with total page 118 pages. Available in PDF, EPUB and Kindle. Book excerpt: A tiny mutation on the X chromosome can shape a family’s history. Passed down from a “carrier” parent to a child, fragile X syndrome is the most common inherited cause of intellectual disability and autism. Beyond that—and a rarity among genetic disorders—some fragile X carriers not only transmit the mutation but also experience related conditions themselves. In such cases, carriers can have tremors, infertility, and psychiatric disorders that complicate raising children with fragile X syndrome—and all too often, they suffer in silence. The Carriers investigates this common but still little-known genetic condition and its life-altering consequences. Anne Skomorowsky reveals how this disorder afflicts families across generations, telling the stories of the mothers and grandparents of fragile X patients and considering how genes interact with family dynamics. She interweaves the personal narratives and family histories of the people affected by fragile X disorders with clear and accessible explanations of the science behind them. Skomorowsky unpacks the latest research on the fragile X mutation and explores the history of its discovery. She highlights the roles of women as carriers, caregivers, and researchers who have made astonishing scientific breakthroughs over the last three decades. The Carriers is an essential book for fragile X families, including those just learning they are carriers, and for all readers interested in the complexities of heredity, the ethical dilemmas of genetic medicine, and the relationship between genes and personality.
Who are these homeless teens wandering the streets of America, backpacks slung over their shoulders, cigarettes dangling from their hands? Why are they on the streets instead of safely harbored at home? A Fragile Thread of Hope answers these questions in the words of four young women rescued from the streets by the author, Andi Buerger. Her own childhood abuse made her keenly aware of three homeless teenaged mothers when she volunteered at a shelter on Thanksgiving of 2008. That day she decided to do something to help. A Fragile Thread of Hope is the story of Andi's redemption from the abuse that sought to define her intertwined with the eventual birth of Beulah's Place, a refuge for lost and wandering teens caught up in drugs, alcohol and even sex trafficking. The women speak their hearts, not just their experiences. The reader will see young street people in a whole new light.
Book Synopsis A Fragile Thread of Hope by : Andi Buerger
Download or read book A Fragile Thread of Hope written by Andi Buerger and published by . This book was released on 2019-10-09 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Who are these homeless teens wandering the streets of America, backpacks slung over their shoulders, cigarettes dangling from their hands? Why are they on the streets instead of safely harbored at home? A Fragile Thread of Hope answers these questions in the words of four young women rescued from the streets by the author, Andi Buerger. Her own childhood abuse made her keenly aware of three homeless teenaged mothers when she volunteered at a shelter on Thanksgiving of 2008. That day she decided to do something to help. A Fragile Thread of Hope is the story of Andi's redemption from the abuse that sought to define her intertwined with the eventual birth of Beulah's Place, a refuge for lost and wandering teens caught up in drugs, alcohol and even sex trafficking. The women speak their hearts, not just their experiences. The reader will see young street people in a whole new light.
Becoming Mrs. Rogers is the true and heart-felt story of one couple's journey into acceptance following a devastating genetic diagnosis for both of their sons. Their story, its highs and lows entwined with its wisdom and compassion, has become a beacon of hope for thousands of families struggling with fragile X and other autism spectrum disorders.Fragile X is a common and inherited cause of learning difficulties, affecting a child's entire world, including social and behavioral problems as well as cognition and speech. Cindi Rogers not only tells her story, but also gives advice for new parents, sharing fact, such as: • the impact of Fragile X on the family• therapeutic methods for a Fragile X child• specific methods used in teaching individuals with Fragile X• the behavioral and physical characteristics of Fragile XRogers and her husband, Chris, share the perspectives and tools they embraced in order to help their boys be as happy and independent as they can possibly be. It is a story of challenges, tears, joy and hope.
Book Synopsis Becoming Mrs. Rogers by : Cindi Rogers
Download or read book Becoming Mrs. Rogers written by Cindi Rogers and published by CreateSpace. This book was released on 2014-05-16 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Becoming Mrs. Rogers is the true and heart-felt story of one couple's journey into acceptance following a devastating genetic diagnosis for both of their sons. Their story, its highs and lows entwined with its wisdom and compassion, has become a beacon of hope for thousands of families struggling with fragile X and other autism spectrum disorders.Fragile X is a common and inherited cause of learning difficulties, affecting a child's entire world, including social and behavioral problems as well as cognition and speech. Cindi Rogers not only tells her story, but also gives advice for new parents, sharing fact, such as: • the impact of Fragile X on the family• therapeutic methods for a Fragile X child• specific methods used in teaching individuals with Fragile X• the behavioral and physical characteristics of Fragile XRogers and her husband, Chris, share the perspectives and tools they embraced in order to help their boys be as happy and independent as they can possibly be. It is a story of challenges, tears, joy and hope.
How do we practice hope after trauma? What shape does hope take after abuse? In grappling with these questions, Ashley E. Theuring implicates the entire church and advocates changing our theologies of hope and our understanding of resurrection. Reimagining the Empty Tomb narrative from the Gospel of Mark in light of the experiences of domestic violence survivors, Fragile Resurrection reveals the possibility for everyday practices and relationships to mediate hope and resurrection. Theuring constructs an embodied imaginative hope found in the wake of trauma, which can speak to our current context of trauma and uncertainty.
Book Synopsis Fragile Resurrection by : Ashley E. Theuring
Download or read book Fragile Resurrection written by Ashley E. Theuring and published by Wipf and Stock Publishers. This book was released on 2021-09-14 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt: How do we practice hope after trauma? What shape does hope take after abuse? In grappling with these questions, Ashley E. Theuring implicates the entire church and advocates changing our theologies of hope and our understanding of resurrection. Reimagining the Empty Tomb narrative from the Gospel of Mark in light of the experiences of domestic violence survivors, Fragile Resurrection reveals the possibility for everyday practices and relationships to mediate hope and resurrection. Theuring constructs an embodied imaginative hope found in the wake of trauma, which can speak to our current context of trauma and uncertainty.
Fragile X Syndrome is estimated to cause 10 per cent of all mental retardation and to be significantly linked to childhood autism. This volume provides a coherent, comprehensive overview of the disorder. The authors are leaders in the field and their approaches span the range of biological and psychological perspectives. The prevalence and historical roots of the Syndrome are examined, as are the wide range of symptomatic behaviours. Recommendations for intervention and treatment are discussed and current scientific findings are presented in a way that makes them accessible to a wide range of readers, including clinicians, teachers and parents.
Book Synopsis Behavior and Development in Fragile X Syndrome by : Elisabeth Dykens
Download or read book Behavior and Development in Fragile X Syndrome written by Elisabeth Dykens and published by SAGE Publications, Incorporated. This book was released on 1993-11-05 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fragile X Syndrome is estimated to cause 10 per cent of all mental retardation and to be significantly linked to childhood autism. This volume provides a coherent, comprehensive overview of the disorder. The authors are leaders in the field and their approaches span the range of biological and psychological perspectives. The prevalence and historical roots of the Syndrome are examined, as are the wide range of symptomatic behaviours. Recommendations for intervention and treatment are discussed and current scientific findings are presented in a way that makes them accessible to a wide range of readers, including clinicians, teachers and parents.
A memoir in which the author tells how she and her husband learned their son J.P. had fragile X syndrome, the most common inherited form of mental retardation, discusses how she and other family members reacted to the news that they carried the premutation and had passed it to their children, and describes life with J.P., now a confident, imaginative adult.
Book Synopsis Spelling Love with an X by : Clare Dunsford
Download or read book Spelling Love with an X written by Clare Dunsford and published by Beacon Press. This book was released on 2007 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: A memoir in which the author tells how she and her husband learned their son J.P. had fragile X syndrome, the most common inherited form of mental retardation, discusses how she and other family members reacted to the news that they carried the premutation and had passed it to their children, and describes life with J.P., now a confident, imaginative adult.
Modern neuroimaging offers tremendous opportunities for gaining insights into normative development and a wide array of developmental neuropsychiatric disorders. Focusing on ontogeny, this text covers basic processes involved in both healthy and atypical maturation, and also addresses the range of neuroimaging techniques most widely used for studying children. This book will enable you to understand normative structural and functional brain maturation and the mechanisms underlying basic developmental processes; become familiar with current knowledge and hypotheses concerning the neural bases of developmental neuropsychiatric disorders; and learn about neuroimaging techniques, including their unique strengths and limitations. Coverage includes normal developmental processes, atypical processing in developmental neuropsychiatric disorders, ethical issues, neuroimaging techniques and their integration with psychopharmacologic and molecular genetic research approaches, and future directions. This comprehensive volume is an essential resource for neurologists, neuropsychologists, psychiatrists, pediatricians, and radiologists concerned with normal development and developmental neuropsychiatric disorders.
Book Synopsis Neuroimaging in Developmental Clinical Neuroscience by : Judith M. Rumsey
Download or read book Neuroimaging in Developmental Clinical Neuroscience written by Judith M. Rumsey and published by Cambridge University Press. This book was released on 2009-02-19 with total page 473 pages. Available in PDF, EPUB and Kindle. Book excerpt: Modern neuroimaging offers tremendous opportunities for gaining insights into normative development and a wide array of developmental neuropsychiatric disorders. Focusing on ontogeny, this text covers basic processes involved in both healthy and atypical maturation, and also addresses the range of neuroimaging techniques most widely used for studying children. This book will enable you to understand normative structural and functional brain maturation and the mechanisms underlying basic developmental processes; become familiar with current knowledge and hypotheses concerning the neural bases of developmental neuropsychiatric disorders; and learn about neuroimaging techniques, including their unique strengths and limitations. Coverage includes normal developmental processes, atypical processing in developmental neuropsychiatric disorders, ethical issues, neuroimaging techniques and their integration with psychopharmacologic and molecular genetic research approaches, and future directions. This comprehensive volume is an essential resource for neurologists, neuropsychologists, psychiatrists, pediatricians, and radiologists concerned with normal development and developmental neuropsychiatric disorders.
Download or read book Fragile X written by Stuart Rice and published by . This book was released on 1999-11-01 with total page 500 pages. Available in PDF, EPUB and Kindle. Book excerpt:
