Hope for Families of Children with Congenital Heart Defects

Hope for Families of Children with Congenital Heart Defects

Author: Lynda T. Young

Publisher:

Published: 2010-06-21

Total Pages: 0

ISBN-13: 9780979780028

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The devastating words Congenital Heart Defect thrust parents of more than 36,000 children annually into a frightening, dark tunnel—dramatically changing the dynamics of each family. Because CHD, attacks unexpectedly, parents reel, bombarded with information regarding treatments, tests, and decisions—as parents echo, "I’ve never felt so alone. I can’t believe this is happening to us." From the initial diagnosis and throughout the daunting journey, the twelve chapters and resources in this guide weave advice, support, and hope from fellow travelers and medical professionals who come alongside through encouraging short stories, refreshing helpful hints, and inspiring scriptures and prayers. Many weary parents pull apart as communication breaks down during these devastating times—sometimes far apart. You-niquely Made is a section that helps family members appreciate different personalities and methods of coping. Overwhelmed families find comfort and courage as they read about the struggles parents face, balancing needs of their child and family (the set-aside spouses and the invisible ones—siblings) and self—the caregiver. Readers come to understand—the new normal of congenital heart disease. Heartfelt stories also include becoming your child’s advocate, reactions to stages of grief including unexpected waves and survivor’s guilt. This second book in the "You Are Not Alone" book series joins national award winning, Hope for Families of Children with Cancer, shining rays of light in the darkness.


Book Synopsis Hope for Families of Children with Congenital Heart Defects by : Lynda T. Young

Download or read book Hope for Families of Children with Congenital Heart Defects written by Lynda T. Young and published by . This book was released on 2010-06-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The devastating words Congenital Heart Defect thrust parents of more than 36,000 children annually into a frightening, dark tunnel—dramatically changing the dynamics of each family. Because CHD, attacks unexpectedly, parents reel, bombarded with information regarding treatments, tests, and decisions—as parents echo, "I’ve never felt so alone. I can’t believe this is happening to us." From the initial diagnosis and throughout the daunting journey, the twelve chapters and resources in this guide weave advice, support, and hope from fellow travelers and medical professionals who come alongside through encouraging short stories, refreshing helpful hints, and inspiring scriptures and prayers. Many weary parents pull apart as communication breaks down during these devastating times—sometimes far apart. You-niquely Made is a section that helps family members appreciate different personalities and methods of coping. Overwhelmed families find comfort and courage as they read about the struggles parents face, balancing needs of their child and family (the set-aside spouses and the invisible ones—siblings) and self—the caregiver. Readers come to understand—the new normal of congenital heart disease. Heartfelt stories also include becoming your child’s advocate, reactions to stages of grief including unexpected waves and survivor’s guilt. This second book in the "You Are Not Alone" book series joins national award winning, Hope for Families of Children with Cancer, shining rays of light in the darkness.


Rainbows & Storms

Rainbows & Storms

Author: Jennifer Jackson

Publisher:

Published: 2021-04

Total Pages: 26

ISBN-13: 9781736816417

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Enter into the world of two young girls, each diagnosed with congenital heart disease, and witness how their unique paths translate into an instant connection between them. Their rare journeys, complete with surgeries at young ages and other complexities difficult for children to process, lends itself to forging a friendship that has given them the confidence to endure the lifelong fight against their CHDs and the emotional challenges that follow. The rainbows and storms the girl face side-by-side creates a special bond that helps carry them through challenges, yet also normalizes their childhood, including embracing their warrior zipper scar. Faith, hope, and love is instilled in the girls from their mothers and proves to be the anchor of all the uncertainty and their roadmap for learning to support each other along the way.


Book Synopsis Rainbows & Storms by : Jennifer Jackson

Download or read book Rainbows & Storms written by Jennifer Jackson and published by . This book was released on 2021-04 with total page 26 pages. Available in PDF, EPUB and Kindle. Book excerpt: Enter into the world of two young girls, each diagnosed with congenital heart disease, and witness how their unique paths translate into an instant connection between them. Their rare journeys, complete with surgeries at young ages and other complexities difficult for children to process, lends itself to forging a friendship that has given them the confidence to endure the lifelong fight against their CHDs and the emotional challenges that follow. The rainbows and storms the girl face side-by-side creates a special bond that helps carry them through challenges, yet also normalizes their childhood, including embracing their warrior zipper scar. Faith, hope, and love is instilled in the girls from their mothers and proves to be the anchor of all the uncertainty and their roadmap for learning to support each other along the way.


Heart Warriors

Heart Warriors

Author: Amanda Adams

Publisher: Behler Publications

Published: 2012-06-12

Total Pages: 323

ISBN-13: 1933016795

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A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.


Book Synopsis Heart Warriors by : Amanda Adams

Download or read book Heart Warriors written by Amanda Adams and published by Behler Publications. This book was released on 2012-06-12 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.


The Heart of a Mother

The Heart of a Mother

Author: Anna Marie Jaworski

Publisher:

Published: 1999

Total Pages: 318

ISBN-13: 9780965250818

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This is the kind of book that every person involved with families living with congenital heart defects should have. Inside you will travel from the point of discovery, to finding support and on through having hope for tomorrow as you meet over sixty inspirational women. These women come from all over the world but they have a very strong bond--they all live in the congenital heart defect community. Book jacket.


Book Synopsis The Heart of a Mother by : Anna Marie Jaworski

Download or read book The Heart of a Mother written by Anna Marie Jaworski and published by . This book was released on 1999 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the kind of book that every person involved with families living with congenital heart defects should have. Inside you will travel from the point of discovery, to finding support and on through having hope for tomorrow as you meet over sixty inspirational women. These women come from all over the world but they have a very strong bond--they all live in the congenital heart defect community. Book jacket.


The Medical Library Association Guide to Finding Out About Heart Disease

The Medical Library Association Guide to Finding Out About Heart Disease

Author: Jeanette de Richmond

Publisher: American Library Association

Published: 2013-10-10

Total Pages: 427

ISBN-13: 155570980X

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Heart disease affects millions of people every year. The MLA Guide to Finding Out About Heart Disease organizes and offers evaluated print and online resources to help readers develop a collection or research specific medical options, incorporating important data and key concepts about risk factors and symptoms of heart disease.


Book Synopsis The Medical Library Association Guide to Finding Out About Heart Disease by : Jeanette de Richmond

Download or read book The Medical Library Association Guide to Finding Out About Heart Disease written by Jeanette de Richmond and published by American Library Association. This book was released on 2013-10-10 with total page 427 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heart disease affects millions of people every year. The MLA Guide to Finding Out About Heart Disease organizes and offers evaluated print and online resources to help readers develop a collection or research specific medical options, incorporating important data and key concepts about risk factors and symptoms of heart disease.


The Heart of a Child

The Heart of a Child

Author: Catherine A. Neill

Publisher: JHU Press

Published: 2003-04-01

Total Pages: 463

ISBN-13: 0801873673

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From birth to adolescence, from doctor's office to playground. Written for parents whose child has a heart disorder, this book provides up-to-date and reliable information from medical experts on children's heart problems. The first edition of The Heart of a Child was widely praised for helping families understand and cope with heart disorders, and many support organizations and websites now recommend this book as "must have" for families. Reflecting changes in treatment and new knowledge about genetics, as well as changes in the system for health care delivery, the text and illustrations have been thoroughly updated with the latest developments in understanding and treating heart problems in children. The second edition includes: • New and updated information on the genetics of heart defects, including syndromes associated with heart defects • Descriptions of new approaches to treatment, including surgery and medication • Advice on how to deal with managed care • Information about advances in prenatal care • Updated list of websites, references, and resources for families • A note to grandparents Written by experts in pediatric cardiology from the Johns Hopkins Medical Institutions and the University of Utah Medical Center, this new edition of The Heart of a Child uses case examples, questions-and-answers, detailed drawings, and careful descriptions to explain the causes of heart disorders, how they are discovered and diagnosed, how they affect children, and how they are treated. The overriding principle of modern treatment is to restore the child who has a heart problem to the best possible health with the minimum of tests and procedures. The Heart of a Child helps parents understand the challenges, the options, the decisions—and the many reasons for hope.


Book Synopsis The Heart of a Child by : Catherine A. Neill

Download or read book The Heart of a Child written by Catherine A. Neill and published by JHU Press. This book was released on 2003-04-01 with total page 463 pages. Available in PDF, EPUB and Kindle. Book excerpt: From birth to adolescence, from doctor's office to playground. Written for parents whose child has a heart disorder, this book provides up-to-date and reliable information from medical experts on children's heart problems. The first edition of The Heart of a Child was widely praised for helping families understand and cope with heart disorders, and many support organizations and websites now recommend this book as "must have" for families. Reflecting changes in treatment and new knowledge about genetics, as well as changes in the system for health care delivery, the text and illustrations have been thoroughly updated with the latest developments in understanding and treating heart problems in children. The second edition includes: • New and updated information on the genetics of heart defects, including syndromes associated with heart defects • Descriptions of new approaches to treatment, including surgery and medication • Advice on how to deal with managed care • Information about advances in prenatal care • Updated list of websites, references, and resources for families • A note to grandparents Written by experts in pediatric cardiology from the Johns Hopkins Medical Institutions and the University of Utah Medical Center, this new edition of The Heart of a Child uses case examples, questions-and-answers, detailed drawings, and careful descriptions to explain the causes of heart disorders, how they are discovered and diagnosed, how they affect children, and how they are treated. The overriding principle of modern treatment is to restore the child who has a heart problem to the best possible health with the minimum of tests and procedures. The Heart of a Child helps parents understand the challenges, the options, the decisions—and the many reasons for hope.


Special Heart

Special Heart

Author: Bret Baier

Publisher: Center Street

Published: 2014-06-03

Total Pages: 262

ISBN-13: 1455583642

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Fox News Channel anchor Bret Baier shares the New York Times bestselling story of his son Paul's ongoing battle with heart disease, and how it transformed his own life and family. This deeply touching personal story is told through the eyes of a journalist as he faces his life's greatest crisis: caring for his critically ill son. With the acute insight of a seasoned reporter, and the deep love of a husband and father, Baier shares behind-the-scenes stories and emotional narrative of young Paul's life thus far. Bret and his wife Amy emerge-just like their brave young son-scarred but infinitely stronger, and clearly understanding what matters most in life. Told by a loving father and master storyteller, this hope-filled account offers an inspirational glimpse into the family of a man who just happens to be someone millions turn to for the day's news. One hundred percent of what the author receives from the sale of this book is donated to various non-profit pediatric heart causes.


Book Synopsis Special Heart by : Bret Baier

Download or read book Special Heart written by Bret Baier and published by Center Street. This book was released on 2014-06-03 with total page 262 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fox News Channel anchor Bret Baier shares the New York Times bestselling story of his son Paul's ongoing battle with heart disease, and how it transformed his own life and family. This deeply touching personal story is told through the eyes of a journalist as he faces his life's greatest crisis: caring for his critically ill son. With the acute insight of a seasoned reporter, and the deep love of a husband and father, Baier shares behind-the-scenes stories and emotional narrative of young Paul's life thus far. Bret and his wife Amy emerge-just like their brave young son-scarred but infinitely stronger, and clearly understanding what matters most in life. Told by a loving father and master storyteller, this hope-filled account offers an inspirational glimpse into the family of a man who just happens to be someone millions turn to for the day's news. One hundred percent of what the author receives from the sale of this book is donated to various non-profit pediatric heart causes.


Born With A Broken Heart

Born With A Broken Heart

Author: Rick Gallegos

Publisher: AuthorHouse

Published: 2010-02

Total Pages: 70

ISBN-13: 1449037607

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Alex's heart book, Born With A Broken Heart, is an inspirational and educational children's book. It is our hope that this book will give parents and children the opportunity to learn about congenital heart disease (CHD) and to spread CHD awareness throughout the world. It is also our wish that the courage and spirit Alex showed in life will inspire others who face challenges to do so with faith, passion, and unconditional love. This book will be available through the following websites: 1) http: //www.authorhouse.com 2) http: //www.alexheartfund.com 3) Facebook Causes - Children's Heart Fund in Memory of Alexander Xavier Gallegos Illustrated by: John Shallenberger


Book Synopsis Born With A Broken Heart by : Rick Gallegos

Download or read book Born With A Broken Heart written by Rick Gallegos and published by AuthorHouse. This book was released on 2010-02 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alex's heart book, Born With A Broken Heart, is an inspirational and educational children's book. It is our hope that this book will give parents and children the opportunity to learn about congenital heart disease (CHD) and to spread CHD awareness throughout the world. It is also our wish that the courage and spirit Alex showed in life will inspire others who face challenges to do so with faith, passion, and unconditional love. This book will be available through the following websites: 1) http: //www.authorhouse.com 2) http: //www.alexheartfund.com 3) Facebook Causes - Children's Heart Fund in Memory of Alexander Xavier Gallegos Illustrated by: John Shallenberger


Pediatric Home Care for Nurses

Pediatric Home Care for Nurses

Author: Wendy Votroubek

Publisher: Jones & Bartlett Learning

Published: 2010-09-15

Total Pages: 763

ISBN-13: 0763755869

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Pediatric Home Care is a practice-based text perfect for either students or for supporting pediatric nurses practicing in a home-care setting. The text includes a variety of nursing information required for this type of care across a large spectrum of physiologic categories and acuity levels. The Third Edition has been completely revised and updated to reflect the most current practice and technology and includes a new focus on evidence based practice.


Book Synopsis Pediatric Home Care for Nurses by : Wendy Votroubek

Download or read book Pediatric Home Care for Nurses written by Wendy Votroubek and published by Jones & Bartlett Learning. This book was released on 2010-09-15 with total page 763 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Home Care is a practice-based text perfect for either students or for supporting pediatric nurses practicing in a home-care setting. The text includes a variety of nursing information required for this type of care across a large spectrum of physiologic categories and acuity levels. The Third Edition has been completely revised and updated to reflect the most current practice and technology and includes a new focus on evidence based practice.


Heart Warriors

Heart Warriors

Author: Amanda Adams

Publisher: Behler Publications, LLC

Published: 2012-04-24

Total Pages: 323

ISBN-13: 1933016809

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A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.


Book Synopsis Heart Warriors by : Amanda Adams

Download or read book Heart Warriors written by Amanda Adams and published by Behler Publications, LLC. This book was released on 2012-04-24 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.