Informal Caregivers: From Hidden Heroes to Integral Part of Care

Informal Caregivers: From Hidden Heroes to Integral Part of Care

Author: Andreas Charalambous

Publisher: Springer Nature

Published: 2023-01-05

Total Pages: 219

ISBN-13: 3031167457

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This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.


Book Synopsis Informal Caregivers: From Hidden Heroes to Integral Part of Care by : Andreas Charalambous

Download or read book Informal Caregivers: From Hidden Heroes to Integral Part of Care written by Andreas Charalambous and published by Springer Nature. This book was released on 2023-01-05 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.

Hidden Heroes

Hidden Heroes

Author: Rajeev Ramchand

Publisher: Rand Corporation

Published: 2014-04

Total Pages: 289

ISBN-13: 0833085581

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"While much has been written about the role of caregiving for the elderly and chronically ill and for children with special needs, little is known about "military caregivers" -- the population of those who care for wounded, ill, and injured military personnel and veterans. These caregivers play an essential role in caring for injured or wounded service members and veterans. This enables those for whom they are caring to live better quality lives, and can result in faster and improved rehabilitation and recovery. Yet playing this role can impose a substantial physical, emotional, and financial toll on caregivers. This report summarizes the results of a study designed to describe the magnitude of military caregiving in the United States today, as well as to identify gaps in the array of programs, policies, and initiatives designed to support military caregivers. Improving military caregivers' well-being and ensuring their continued ability to provide care will require multifaceted approaches to reducing the current burdens caregiving may impose, and bolstering their ability to serve as caregivers more effectively. Given the systematic differences among military caregiver groups, it is also important that tailored approaches meet the unique needs and characteristics of post-9/11 caregivers."--Abstract.


Book Synopsis Hidden Heroes by : Rajeev Ramchand

Download or read book Hidden Heroes written by Rajeev Ramchand and published by Rand Corporation. This book was released on 2014-04 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: "While much has been written about the role of caregiving for the elderly and chronically ill and for children with special needs, little is known about "military caregivers" -- the population of those who care for wounded, ill, and injured military personnel and veterans. These caregivers play an essential role in caring for injured or wounded service members and veterans. This enables those for whom they are caring to live better quality lives, and can result in faster and improved rehabilitation and recovery. Yet playing this role can impose a substantial physical, emotional, and financial toll on caregivers. This report summarizes the results of a study designed to describe the magnitude of military caregiving in the United States today, as well as to identify gaps in the array of programs, policies, and initiatives designed to support military caregivers. Improving military caregivers' well-being and ensuring their continued ability to provide care will require multifaceted approaches to reducing the current burdens caregiving may impose, and bolstering their ability to serve as caregivers more effectively. Given the systematic differences among military caregiver groups, it is also important that tailored approaches meet the unique needs and characteristics of post-9/11 caregivers."--Abstract.

Informal Caregiving

Informal Caregiving

Author:

Publisher:

Published: 1998

Total Pages: 34

ISBN-13:

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Book Synopsis Informal Caregiving by :

Download or read book Informal Caregiving written by and published by . This book was released on 1998 with total page 34 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities

The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities

Author: Gavin Ware, Debra

Publisher: IGI Global

Published: 2018-11-16

Total Pages: 131

ISBN-13: 1522574530

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Because progressive advancements to healthcare practices are leading to longer lifespans, an increased number of aging individuals now require constant care from practiced caregivers. The financial costs of in-home care can be quite high; therefore, many families are opting to stand in as caregivers, and this can lead to various impacts on their own social and psychological wellbeing. The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities provides autobiographical accounts and statistical data associated with the caregiving experience, as well as the methods to discern the positive psychological forces that shape the subjective wellbeing of informal caregivers. Highlighting topics such as institutional vs. informal caregiving, special healthcare needs, and veteran care, this book is ideally designed for psychologists, therapists, researchers, medical institutions, academia, and students seeking current research on the subjective wellbeing of informal caregivers.


Book Synopsis The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities by : Gavin Ware, Debra

Download or read book The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities written by Gavin Ware, Debra and published by IGI Global. This book was released on 2018-11-16 with total page 131 pages. Available in PDF, EPUB and Kindle. Book excerpt: Because progressive advancements to healthcare practices are leading to longer lifespans, an increased number of aging individuals now require constant care from practiced caregivers. The financial costs of in-home care can be quite high; therefore, many families are opting to stand in as caregivers, and this can lead to various impacts on their own social and psychological wellbeing. The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities provides autobiographical accounts and statistical data associated with the caregiving experience, as well as the methods to discern the positive psychological forces that shape the subjective wellbeing of informal caregivers. Highlighting topics such as institutional vs. informal caregiving, special healthcare needs, and veteran care, this book is ideally designed for psychologists, therapists, researchers, medical institutions, academia, and students seeking current research on the subjective wellbeing of informal caregivers.

Family Care and Social Capital: Transitions in Informal Care

Family Care and Social Capital: Transitions in Informal Care

Author: Patrick Barrett

Publisher: Springer Science & Business Media

Published: 2013-08-04

Total Pages: 186

ISBN-13: 9400768729

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Becoming a caregiver is increasingly an inevitable experience for many people and, therefore, a likely life transition. Drawing on research and personal experiences of working with family caregivers, this book examines a range of family caregiving situations from across the life course. It seeks to capture the dynamics of caregiving in a number of common situations: caregiving during infancy, for adults who acquire a disability through accidents or illness, for older people with age-related issues, and caregiving by children and adolescent carers and grandparent carers. In drawing attention to key moments of vulnerability faced by family and informal caregivers, and by suggesting how to assist ‘reconnection’ at these moments, the book provides a guide for those working in the area of health, disability and care. Informal care is conceptualised as occurring with the context of personal interrelationships, these being nested within wider kin networks and linked with wider professional formal care networks. Informal care is seen both as an expression of social capital and as an activity that builds social capital. It is an indicator of resources of mutual support within social networks, and it has the effect of adding to the stock of social resources. The book makes a case, therefore, for facilitating the development of social capital by strengthening the capacity of informal caregivers and caregiver groups, and by improving the linkages with formal care organisations.


Book Synopsis Family Care and Social Capital: Transitions in Informal Care by : Patrick Barrett

Download or read book Family Care and Social Capital: Transitions in Informal Care written by Patrick Barrett and published by Springer Science & Business Media. This book was released on 2013-08-04 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: Becoming a caregiver is increasingly an inevitable experience for many people and, therefore, a likely life transition. Drawing on research and personal experiences of working with family caregivers, this book examines a range of family caregiving situations from across the life course. It seeks to capture the dynamics of caregiving in a number of common situations: caregiving during infancy, for adults who acquire a disability through accidents or illness, for older people with age-related issues, and caregiving by children and adolescent carers and grandparent carers. In drawing attention to key moments of vulnerability faced by family and informal caregivers, and by suggesting how to assist ‘reconnection’ at these moments, the book provides a guide for those working in the area of health, disability and care. Informal care is conceptualised as occurring with the context of personal interrelationships, these being nested within wider kin networks and linked with wider professional formal care networks. Informal care is seen both as an expression of social capital and as an activity that builds social capital. It is an indicator of resources of mutual support within social networks, and it has the effect of adding to the stock of social resources. The book makes a case, therefore, for facilitating the development of social capital by strengthening the capacity of informal caregivers and caregiver groups, and by improving the linkages with formal care organisations.

The Hidden Among the Hidden

The Hidden Among the Hidden

Author: Helen K. Black

Publisher: Oxford University Press

Published: 2017

Total Pages: 193

ISBN-13: 0190602325

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What are the experiences of African-American elder male caregivers? Based on research with twelve African-American caregivers born in the first half of the 20th century, this book captures the complexity and poignancy of the caregiving pilgrimage, and roots men's caregiving narratives within the biographical and historical context of their lives.


Book Synopsis The Hidden Among the Hidden by : Helen K. Black

Download or read book The Hidden Among the Hidden written by Helen K. Black and published by Oxford University Press. This book was released on 2017 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: What are the experiences of African-American elder male caregivers? Based on research with twelve African-American caregivers born in the first half of the 20th century, this book captures the complexity and poignancy of the caregiving pilgrimage, and roots men's caregiving narratives within the biographical and historical context of their lives.

Caregiving Systems

Caregiving Systems

Author: Steven H. Zarit

Publisher: Routledge

Published: 2019-02-21

Total Pages: 342

ISBN-13: 1317728572

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Caregiving has emerged as a critical issue in the second half of the life cycle. With the growth of the older population, there have been dramatic increases in the number of people needing care and assistance. The responsibility for care typically falls on families at a time when they have limited resources to meet these needs. At a societal level, the need for care for growing numbers of disabled elders poses a major challenge for how to organize supportive services in an efficient and responsive system. Bringing together multiple perspectives on caregiving, the authors' explore informal and formal family caregiving and the pivotal issue of how these systems interface and interact. An overview of this variation is provided by examining family caregiving from three perspectives: * the effects of culture on helping patterns and family responsibility, * how different disabilities affect patterns of family care, and * longitudinal perspectives on the impact that caregiving has on family members.


Book Synopsis Caregiving Systems by : Steven H. Zarit

Download or read book Caregiving Systems written by Steven H. Zarit and published by Routledge. This book was released on 2019-02-21 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregiving has emerged as a critical issue in the second half of the life cycle. With the growth of the older population, there have been dramatic increases in the number of people needing care and assistance. The responsibility for care typically falls on families at a time when they have limited resources to meet these needs. At a societal level, the need for care for growing numbers of disabled elders poses a major challenge for how to organize supportive services in an efficient and responsive system. Bringing together multiple perspectives on caregiving, the authors' explore informal and formal family caregiving and the pivotal issue of how these systems interface and interact. An overview of this variation is provided by examining family caregiving from three perspectives: * the effects of culture on helping patterns and family responsibility, * how different disabilities affect patterns of family care, and * longitudinal perspectives on the impact that caregiving has on family members.

Families Caring for an Aging America

Families Caring for an Aging America

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-08

Total Pages: 367

ISBN-13: 0309448093

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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.


Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine

Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Forced to Care

Forced to Care

Author: Evelyn Nakano Glenn

Publisher: Harvard University Press

Published: 2012-03-05

Total Pages: 271

ISBN-13: 0674064151

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The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern. Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in womenÑespecially immigrants and women of colorÑperforming a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers. This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.


Book Synopsis Forced to Care by : Evelyn Nakano Glenn

Download or read book Forced to Care written by Evelyn Nakano Glenn and published by Harvard University Press. This book was released on 2012-03-05 with total page 271 pages. Available in PDF, EPUB and Kindle. Book excerpt: The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern. Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in womenÑespecially immigrants and women of colorÑperforming a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers. This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.

User Participation In Health And Social Care Research

User Participation In Health And Social Care Research

Author: Nolan, Mike

Publisher: McGraw-Hill Education (UK)

Published: 2007-10-01

Total Pages: 254

ISBN-13: 0335222056

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This is a timely book, given the increasing emphasis on user participation in both research and health and social service provision, that can be read in conjunction with a more general book on research..."David Hicks, Liverpool John Moores University, UK User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation. The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice. In addition the text: Considers the issues, challenges and rewards of user participation research Draws on the actual experience of doing research and working with users Includes the voices and contributions of users in reporting research User Participation in Health and Social Care Research: Voices, Values and Evaluationis key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.


Book Synopsis User Participation In Health And Social Care Research by : Nolan, Mike

Download or read book User Participation In Health And Social Care Research written by Nolan, Mike and published by McGraw-Hill Education (UK). This book was released on 2007-10-01 with total page 254 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a timely book, given the increasing emphasis on user participation in both research and health and social service provision, that can be read in conjunction with a more general book on research..."David Hicks, Liverpool John Moores University, UK User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation. The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice. In addition the text: Considers the issues, challenges and rewards of user participation research Draws on the actual experience of doing research and working with users Includes the voices and contributions of users in reporting research User Participation in Health and Social Care Research: Voices, Values and Evaluationis key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.