Lewy Body Dementia: Information for Patients, Families, and Professionals

Lewy Body Dementia: Information for Patients, Families, and Professionals

Author: U.S. Department of Health and Human Services

Publisher:

Published: 2016-02-01

Total Pages: 44

ISBN-13: 9781523801794

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A low-cost print edition of a government document available online. Lewy body dementia is a complex disorder characterized by progressive cognitive decline and problems with movement, behavior, and mood. It is one of the most common causes of dementia, after Alzheimer's disease and vascular disease. This publication is meant to help people with Lewy body dementia, their families, and professionals learn about this disease and resources for coping. It explains what is known about the different types of Lewy body dementia and how they are diagnosed. Information about the treatment and management of this disease, with practical advice for both people with Lewy body dementia and their caregivers is provided. Sources of additional information are included.


Book Synopsis Lewy Body Dementia: Information for Patients, Families, and Professionals by : U.S. Department of Health and Human Services

Download or read book Lewy Body Dementia: Information for Patients, Families, and Professionals written by U.S. Department of Health and Human Services and published by . This book was released on 2016-02-01 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: A low-cost print edition of a government document available online. Lewy body dementia is a complex disorder characterized by progressive cognitive decline and problems with movement, behavior, and mood. It is one of the most common causes of dementia, after Alzheimer's disease and vascular disease. This publication is meant to help people with Lewy body dementia, their families, and professionals learn about this disease and resources for coping. It explains what is known about the different types of Lewy body dementia and how they are diagnosed. Information about the treatment and management of this disease, with practical advice for both people with Lewy body dementia and their caregivers is provided. Sources of additional information are included.


Lewy Body Dementia: Information for Patients, Families, and Professionals (Revised June 2018)

Lewy Body Dementia: Information for Patients, Families, and Professionals (Revised June 2018)

Author: U.S. Department of Health and Human Services

Publisher: Lulu.com

Published: 2019-04-13

Total Pages: 44

ISBN-13: 0359588247

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Lewy body dementia (LBD) is a complex and challenging brain disorder. It is complex because it affects many parts of the brain in ways that scientists are trying to understand more fully. It is challenging because its many possible symptoms make it hard to do everyday tasks that once came easily. Although less known than its ?cousins? Alzheimer's disease and Parkinson's disease, LBD is not a rare disorder. More than 1 million Americans, most of them older adults, are affected by its disabling changes in the ability to think and move. As researchers seek better ways to treat LBD?and ultimately to find a cure?people with LBD and their families struggle to get an accurate diagnosis, find the best treatment, and manage at home.


Book Synopsis Lewy Body Dementia: Information for Patients, Families, and Professionals (Revised June 2018) by : U.S. Department of Health and Human Services

Download or read book Lewy Body Dementia: Information for Patients, Families, and Professionals (Revised June 2018) written by U.S. Department of Health and Human Services and published by Lulu.com. This book was released on 2019-04-13 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lewy body dementia (LBD) is a complex and challenging brain disorder. It is complex because it affects many parts of the brain in ways that scientists are trying to understand more fully. It is challenging because its many possible symptoms make it hard to do everyday tasks that once came easily. Although less known than its ?cousins? Alzheimer's disease and Parkinson's disease, LBD is not a rare disorder. More than 1 million Americans, most of them older adults, are affected by its disabling changes in the ability to think and move. As researchers seek better ways to treat LBD?and ultimately to find a cure?people with LBD and their families struggle to get an accurate diagnosis, find the best treatment, and manage at home.


A Caregiver's Guide to Lewy Body Dementia

A Caregiver's Guide to Lewy Body Dementia

Author: Helen Buell Whitworth, "MS, BSN"

Publisher: Demos Medical Publishing

Published: 2010-10-20

Total Pages: 312

ISBN-13: 9781935281443

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Received a 2012 Caregiver Friendly Award from Today's Caregiver Magazine Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is. A Caregiver's Guide to Lewy Body Dementia is written in everyday language and filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms. This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia.


Book Synopsis A Caregiver's Guide to Lewy Body Dementia by : Helen Buell Whitworth, "MS, BSN"

Download or read book A Caregiver's Guide to Lewy Body Dementia written by Helen Buell Whitworth, "MS, BSN" and published by Demos Medical Publishing. This book was released on 2010-10-20 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Received a 2012 Caregiver Friendly Award from Today's Caregiver Magazine Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is. A Caregiver's Guide to Lewy Body Dementia is written in everyday language and filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms. This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia.


Dementia with Lewy Bodies

Dementia with Lewy Bodies

Author: John O'Brien

Publisher: CRC Press

Published: 2005-11-29

Total Pages: 286

ISBN-13: 0203313909

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Filling a noticeable gap in the market for a new text solely focused on Dementia with Lewy Bodies, this book discusses cutting-edge topics covering the condition from diagnosis to management, as well as what is known about the neurobiological changes involved. With huge progress having been made over the last decade in terms of the disorder


Book Synopsis Dementia with Lewy Bodies by : John O'Brien

Download or read book Dementia with Lewy Bodies written by John O'Brien and published by CRC Press. This book was released on 2005-11-29 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: Filling a noticeable gap in the market for a new text solely focused on Dementia with Lewy Bodies, this book discusses cutting-edge topics covering the condition from diagnosis to management, as well as what is known about the neurobiological changes involved. With huge progress having been made over the last decade in terms of the disorder


2023 Lewy Body Dementia - Information for Patients, Families, and Professionals

2023 Lewy Body Dementia - Information for Patients, Families, and Professionals

Author: National Institutes of Health

Publisher:

Published: 2024-05-10

Total Pages: 0

ISBN-13: 9781998428298

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Printed in color. Lewy body dementia (LBD) is a complex and challenging brain disorder. LBD is characterized by the presence of Lewy bodies in the brain and cognitive decline that worsens over time. LBD also affects other parts of the body and bodily functions in ways that scientists are trying to understand more fully. LBD's many possible symptoms make it hard to do everyday tasks that once came easily. Although less is known about LBD than other forms of dementia, it is not a rare disorder. LBD has two forms - dementia with Lewy bodies and Parkinson's disease dementia. Although they have some differences, the two forms are related. Most people living with either form of the disorder are older adults, and they experience disabling changes in their ability to think and move due to the disorder. There is currently no cure for LBD. While researchers seek better ways to treat and cure the disorder, people with LBD and their families continue to face challenges to get an accurate diagnosis, find the best treatments, and manage at home and in their communities. This booklet is meant to help people living with LBD, their families, caregivers, and professionals learn more about the disease and find resources for coping. It explains what is known about the different forms of LBD and how they are diagnosed. Most importantly, it describes how to treat and manage this difficult disease, with practical advice for both people with LBD and their caregivers. A list of resources begins on page 46.


Book Synopsis 2023 Lewy Body Dementia - Information for Patients, Families, and Professionals by : National Institutes of Health

Download or read book 2023 Lewy Body Dementia - Information for Patients, Families, and Professionals written by National Institutes of Health and published by . This book was released on 2024-05-10 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Printed in color. Lewy body dementia (LBD) is a complex and challenging brain disorder. LBD is characterized by the presence of Lewy bodies in the brain and cognitive decline that worsens over time. LBD also affects other parts of the body and bodily functions in ways that scientists are trying to understand more fully. LBD's many possible symptoms make it hard to do everyday tasks that once came easily. Although less is known about LBD than other forms of dementia, it is not a rare disorder. LBD has two forms - dementia with Lewy bodies and Parkinson's disease dementia. Although they have some differences, the two forms are related. Most people living with either form of the disorder are older adults, and they experience disabling changes in their ability to think and move due to the disorder. There is currently no cure for LBD. While researchers seek better ways to treat and cure the disorder, people with LBD and their families continue to face challenges to get an accurate diagnosis, find the best treatments, and manage at home and in their communities. This booklet is meant to help people living with LBD, their families, caregivers, and professionals learn more about the disease and find resources for coping. It explains what is known about the different forms of LBD and how they are diagnosed. Most importantly, it describes how to treat and manage this difficult disease, with practical advice for both people with LBD and their caregivers. A list of resources begins on page 46.


Dancing with Lewy

Dancing with Lewy

Author: Nancy R. Poland

Publisher: Morgan James Publishing

Published: 2020-11-03

Total Pages: 170

ISBN-13: 1631951289

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A woman recounts dementia’s toll on her family and shares lessons she learned that can provide help and hope to caregivers tending to their own loved ones. Within Dancing with Lewy, readers meet Lee and Nancy. Lee was born into a large farming family just before the Great Depression. He was a World War II Veteran, self-made businessman, artist, poet, and a man who would give a stranger his last nickel. Lee’s third daughter, Nancy, is practical, organized, pragmatic, a writer, and equals her father in a passion for life. Nancy was determined to take the helm when Lee’s mind began “dancing” with Lewy body dementia even though he resolved to remain independent while his mind slipped away. Within Dancing with Lewy, readers also meet God as the one who carried the family through this storm and offered grace to the weariness of the family. This memoir is written through Nancy’s eyes while original poetry by Lee is woven throughout to provide readers a glimpse into his outlook to life. In Part I of Dancing with Lewy,Nancy revisits Lee’s young life, her own years growing up with her dad, and the toll dementia took on their family. She shares the pain of grief when her mom died of cancer and her dad became even more confused. In Part II, she shares the lessons she learned along the way and offers hope for caregivers tending to their loved one(s) who have a debilitating illness. Nancy offers practical advice for caregivers such as how to: Get legal documents in order Find community resources Choose a nursing home and partner with the staff Treat their loved one with respect and dignity


Book Synopsis Dancing with Lewy by : Nancy R. Poland

Download or read book Dancing with Lewy written by Nancy R. Poland and published by Morgan James Publishing. This book was released on 2020-11-03 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: A woman recounts dementia’s toll on her family and shares lessons she learned that can provide help and hope to caregivers tending to their own loved ones. Within Dancing with Lewy, readers meet Lee and Nancy. Lee was born into a large farming family just before the Great Depression. He was a World War II Veteran, self-made businessman, artist, poet, and a man who would give a stranger his last nickel. Lee’s third daughter, Nancy, is practical, organized, pragmatic, a writer, and equals her father in a passion for life. Nancy was determined to take the helm when Lee’s mind began “dancing” with Lewy body dementia even though he resolved to remain independent while his mind slipped away. Within Dancing with Lewy, readers also meet God as the one who carried the family through this storm and offered grace to the weariness of the family. This memoir is written through Nancy’s eyes while original poetry by Lee is woven throughout to provide readers a glimpse into his outlook to life. In Part I of Dancing with Lewy,Nancy revisits Lee’s young life, her own years growing up with her dad, and the toll dementia took on their family. She shares the pain of grief when her mom died of cancer and her dad became even more confused. In Part II, she shares the lessons she learned along the way and offers hope for caregivers tending to their loved one(s) who have a debilitating illness. Nancy offers practical advice for caregivers such as how to: Get legal documents in order Find community resources Choose a nursing home and partner with the staff Treat their loved one with respect and dignity


Lewy Body Dementia Survival &Me

Lewy Body Dementia Survival &Me

Author: Kevin Quaid

Publisher:

Published: 2018-06-19

Total Pages: 208

ISBN-13: 9781720495758

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Kevin Quaid author of this book was diagnosed with Lewy Body Dementia when he was 53 years old having been diagnosed with Parkinson's Disease two years earlier, however he started to show symptoms of Parkinson's three years before that. This story takes a look at his life, the highs and lows and sometimes his struggle with life itself.This book then leads into day to day living with this horrible disease Lewy Body Dementia, not only from Kevin's point of view as a patient but also how it affects his family and how his wife copes with being put in the role of a carer.There are some wonderful practical and helpful tips on how to make life a little easier for everyone, and some hints on how to have some difficult discussions with the sufferer before their mind begins to slip.This book is real and raw and its' aim is to help those who find themselves in the same terrible position as Kevin and his family.


Book Synopsis Lewy Body Dementia Survival &Me by : Kevin Quaid

Download or read book Lewy Body Dementia Survival &Me written by Kevin Quaid and published by . This book was released on 2018-06-19 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: Kevin Quaid author of this book was diagnosed with Lewy Body Dementia when he was 53 years old having been diagnosed with Parkinson's Disease two years earlier, however he started to show symptoms of Parkinson's three years before that. This story takes a look at his life, the highs and lows and sometimes his struggle with life itself.This book then leads into day to day living with this horrible disease Lewy Body Dementia, not only from Kevin's point of view as a patient but also how it affects his family and how his wife copes with being put in the role of a carer.There are some wonderful practical and helpful tips on how to make life a little easier for everyone, and some hints on how to have some difficult discussions with the sufferer before their mind begins to slip.This book is real and raw and its' aim is to help those who find themselves in the same terrible position as Kevin and his family.


Palliative Care for Advanced Alzheimer's and Dementia

Palliative Care for Advanced Alzheimer's and Dementia

Author: Jennifer V. Long, CRNA, CRNP, MS

Publisher: Springer Publishing Company

Published: 2010-07-23

Total Pages: 350

ISBN-13: 0826106765

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2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life


Book Synopsis Palliative Care for Advanced Alzheimer's and Dementia by : Jennifer V. Long, CRNA, CRNP, MS

Download or read book Palliative Care for Advanced Alzheimer's and Dementia written by Jennifer V. Long, CRNA, CRNP, MS and published by Springer Publishing Company. This book was released on 2010-07-23 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life


Living with Lewy Body Dementia

Living with Lewy Body Dementia

Author: Judy Towne Jennings Pt Ma

Publisher: WestBow Press

Published: 2012-09

Total Pages: 160

ISBN-13: 1449760953

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"Judy is a wonderful physical therapist, who has energy, enthusiasm and the best 'can do' attitude. She has accurately given a description of the major task of 'in-home care' that most people cannot understand. I applaud her efforts; both the monumental task of care for Dean (who was a super guy) and writing this helpful book. Job well done!" -Joyce Dunlevy Cready, RN, BSN, Rehabilitation "I want to commend Mrs. Jennings on the work done to put together this book. It will be a valuable resource for patients and caregivers, and provides an honest and thoughtful look at her experiences with LBD. It was an honor to care for Dean and I know that her work with him and in this book will help others who are going through the same difficult life journey." -Andrew P. Duker, MD, Neurology "This book is medically appropriate and concise. The information has breadth that is not available in other books. I will recommend it to all my patients with Lewy Body Dementia." -James P. Simcoe, MD, Family Practice "What an outstanding caregiver and loving wife to share this most personal knowledge, gained from her heartfelt experience with Lewy Body Dementia." - Peter A. Towne, PT, FAPTA Linda L. Towne, PT, MEd, Orthopedic and Neurological Physical Therapy


Book Synopsis Living with Lewy Body Dementia by : Judy Towne Jennings Pt Ma

Download or read book Living with Lewy Body Dementia written by Judy Towne Jennings Pt Ma and published by WestBow Press. This book was released on 2012-09 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Judy is a wonderful physical therapist, who has energy, enthusiasm and the best 'can do' attitude. She has accurately given a description of the major task of 'in-home care' that most people cannot understand. I applaud her efforts; both the monumental task of care for Dean (who was a super guy) and writing this helpful book. Job well done!" -Joyce Dunlevy Cready, RN, BSN, Rehabilitation "I want to commend Mrs. Jennings on the work done to put together this book. It will be a valuable resource for patients and caregivers, and provides an honest and thoughtful look at her experiences with LBD. It was an honor to care for Dean and I know that her work with him and in this book will help others who are going through the same difficult life journey." -Andrew P. Duker, MD, Neurology "This book is medically appropriate and concise. The information has breadth that is not available in other books. I will recommend it to all my patients with Lewy Body Dementia." -James P. Simcoe, MD, Family Practice "What an outstanding caregiver and loving wife to share this most personal knowledge, gained from her heartfelt experience with Lewy Body Dementia." - Peter A. Towne, PT, FAPTA Linda L. Towne, PT, MEd, Orthopedic and Neurological Physical Therapy


Lewy Body Dialogue

Lewy Body Dialogue

Author: Patricia Potter-Efron

Publisher: Bookbaby

Published: 2020-09

Total Pages: 196

ISBN-13: 9781098309510

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Pat and Ron Potter-Efron had been married for 54 years when Pat received the diagnosis of Lewy Body Dementia in 2018. Both were recently retired mental health counselors who had been co-owners of a private clinic in Eau Claire, WI. They were also co-authors of several popular books, including the best sellers Letting Go of Shame and Letting Go of Anger. They soon began facing the reality of how Lewy Body Dementia was affecting their lives. Most importantly, they searched for a way to continue to contribute meaningfully to society while living as complete and satisfying lives as possible. That is when they decided to write a journal of their experiences, but a journal different than any they had encountered as they reviewed the Lewy Body literature. Pat and Ron began to write a series of conversations. Ron would initiate a relevant topic (hallucinations; teamwork; mortality, etc.) and then Pat would add her comments. Fortunately, Pat has retained her ability to clearly describe her thoughts and feelings even as some of her abilities have diminished. Pat does not always agree with Ron''s observations, of course. The perspectives of care receiver inevitably differ from those of care giver. When other couples in the Lewy Body dementia community discovered Ron and Pat''s work they were eager to see it. The result was the creation of a website/blog named Lewy Body Dialogue. This book represents a compilation of the first fifty-six chapters of their journal, written over a two year period. It is the creation of a true care partnership. CONTENTS ___ Preface ----- Introduction Ch.1. Hallucinations from Outside and Inside Ch.2. Am I a Helicopter Husband? Ch.3: Noise Ch.4. Good Days Ch.5. The Need for Support Ch.6. Some Days You Just Want to Cry Ch.7. Who Should I Tell that I''ve Got Lewy Body? Acceptance, Embarrassment, Shame and Trust Ch.8. "Showtime" Ch.9. Questions for the New Year: 2019 and then 2020 Ch.10. Physical Intimacy: Hugs and More Ch.11. What Comes Next? The Lewy Body Sequencing Problem Ch.12. We are Still a Team Ch.13. Mortality Ch.14. Waking Dreams, RBD, and Sleep Deprivation Ch.15. Slightly Unusual Behaviors (SUBs) Ch.16. Depression and Lewy Body Disorder Ch.17. Not Driving - A Blow to Pat''s Spirit Ch.18. I''m Scared to Travel Away from Pat Ch.19. Acceptance: Yes; Passivity: No Ch.20. Sudden Mood Changes Ch.21. Adding Structure to Combat Lack of Initiative and Apathy Ch.22. If You Don''t Laugh, You''ll Cry Ch.23. Insecurity Ch.24. "Keep on Trucking" but "I Won''t Regret a Thing." Ch.25. Caregiver Meltdown Ch.26. Porch Bird Watching on the First Beautiful Spring Day of the Year Ch.27. Blackcap Pie, Memory Loss and Confusion Ch.28. Yes! Pat''s Test Scores Have Improved Ch.29. We are "Care Partners" Ch.30. Some Mornings are Full of People Ch.31. "I Know you are my Husband because You are Wearing the Same Shirt" Ch.32. Today''s Surprise: Ron Gets a Heart Stent Ch.33. Pat Tells Our Book Club Members She Has Lewy Body Ch.34. Trying Out a New Group Ch.35. Taking a Chance with a Combined Birthday Celebration Ch.36. After a Crisis is Over Ch.37. Pat Realizes She''s been Hallucinating Ch.38. From Good to Bad in an Instant: Evidence of Fluctuation Ch.39. "I Wasn''t Talking in My Sleep. I was Talking in Your Sleep" Ch.40. Pat Joins a Memory Choir Ch.41. Ron Makes a Serious Mistake - Then So does Pat Ch.42. What was Supposed to Bring Pride Brings Shame Instead Ch.43. "The Apocalypse Appeared to have Arrived and Yet it was Not Apocalyptic" Ch.44. Pat Asks Ron How He has been Affected by Her Lewy Body Ch.45. What Ron Doesn''t Understand About Me Ch.46. Who Would Take Care of Pat If I Couldn''t? Ch.47. Mornings Can be Unpredictable Ch.48 Two Exhausting Days: Pat Faints on Wednesday but Sings in a Concert on Thursday Ch.49 Two Rons Ch.50 Pat''s Sense of Time is Off Ch. 51 Our Children Want us to Move to the City Ch. 52 Our Two Truths Are Like Oil and Water


Book Synopsis Lewy Body Dialogue by : Patricia Potter-Efron

Download or read book Lewy Body Dialogue written by Patricia Potter-Efron and published by Bookbaby. This book was released on 2020-09 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pat and Ron Potter-Efron had been married for 54 years when Pat received the diagnosis of Lewy Body Dementia in 2018. Both were recently retired mental health counselors who had been co-owners of a private clinic in Eau Claire, WI. They were also co-authors of several popular books, including the best sellers Letting Go of Shame and Letting Go of Anger. They soon began facing the reality of how Lewy Body Dementia was affecting their lives. Most importantly, they searched for a way to continue to contribute meaningfully to society while living as complete and satisfying lives as possible. That is when they decided to write a journal of their experiences, but a journal different than any they had encountered as they reviewed the Lewy Body literature. Pat and Ron began to write a series of conversations. Ron would initiate a relevant topic (hallucinations; teamwork; mortality, etc.) and then Pat would add her comments. Fortunately, Pat has retained her ability to clearly describe her thoughts and feelings even as some of her abilities have diminished. Pat does not always agree with Ron''s observations, of course. The perspectives of care receiver inevitably differ from those of care giver. When other couples in the Lewy Body dementia community discovered Ron and Pat''s work they were eager to see it. The result was the creation of a website/blog named Lewy Body Dialogue. This book represents a compilation of the first fifty-six chapters of their journal, written over a two year period. It is the creation of a true care partnership. CONTENTS ___ Preface ----- Introduction Ch.1. Hallucinations from Outside and Inside Ch.2. Am I a Helicopter Husband? Ch.3: Noise Ch.4. Good Days Ch.5. The Need for Support Ch.6. Some Days You Just Want to Cry Ch.7. Who Should I Tell that I''ve Got Lewy Body? Acceptance, Embarrassment, Shame and Trust Ch.8. "Showtime" Ch.9. Questions for the New Year: 2019 and then 2020 Ch.10. Physical Intimacy: Hugs and More Ch.11. What Comes Next? The Lewy Body Sequencing Problem Ch.12. We are Still a Team Ch.13. Mortality Ch.14. Waking Dreams, RBD, and Sleep Deprivation Ch.15. Slightly Unusual Behaviors (SUBs) Ch.16. Depression and Lewy Body Disorder Ch.17. Not Driving - A Blow to Pat''s Spirit Ch.18. I''m Scared to Travel Away from Pat Ch.19. Acceptance: Yes; Passivity: No Ch.20. Sudden Mood Changes Ch.21. Adding Structure to Combat Lack of Initiative and Apathy Ch.22. If You Don''t Laugh, You''ll Cry Ch.23. Insecurity Ch.24. "Keep on Trucking" but "I Won''t Regret a Thing." Ch.25. Caregiver Meltdown Ch.26. Porch Bird Watching on the First Beautiful Spring Day of the Year Ch.27. Blackcap Pie, Memory Loss and Confusion Ch.28. Yes! Pat''s Test Scores Have Improved Ch.29. We are "Care Partners" Ch.30. Some Mornings are Full of People Ch.31. "I Know you are my Husband because You are Wearing the Same Shirt" Ch.32. Today''s Surprise: Ron Gets a Heart Stent Ch.33. Pat Tells Our Book Club Members She Has Lewy Body Ch.34. Trying Out a New Group Ch.35. Taking a Chance with a Combined Birthday Celebration Ch.36. After a Crisis is Over Ch.37. Pat Realizes She''s been Hallucinating Ch.38. From Good to Bad in an Instant: Evidence of Fluctuation Ch.39. "I Wasn''t Talking in My Sleep. I was Talking in Your Sleep" Ch.40. Pat Joins a Memory Choir Ch.41. Ron Makes a Serious Mistake - Then So does Pat Ch.42. What was Supposed to Bring Pride Brings Shame Instead Ch.43. "The Apocalypse Appeared to have Arrived and Yet it was Not Apocalyptic" Ch.44. Pat Asks Ron How He has been Affected by Her Lewy Body Ch.45. What Ron Doesn''t Understand About Me Ch.46. Who Would Take Care of Pat If I Couldn''t? Ch.47. Mornings Can be Unpredictable Ch.48 Two Exhausting Days: Pat Faints on Wednesday but Sings in a Concert on Thursday Ch.49 Two Rons Ch.50 Pat''s Sense of Time is Off Ch. 51 Our Children Want us to Move to the City Ch. 52 Our Two Truths Are Like Oil and Water