Living with HHT

Living with HHT

Author: Sara Palmer

Publisher: JHU Press

Published: 2017-12

Total Pages: 199

ISBN-13: 1421423901

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Everything you need to know about nosebleeds, arteriovenous malformations, and other symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.


Book Synopsis Living with HHT by : Sara Palmer

Download or read book Living with HHT written by Sara Palmer and published by JHU Press. This book was released on 2017-12 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Everything you need to know about nosebleeds, arteriovenous malformations, and other symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.

Everything about Hereditary Hemorrhagic Telangiectasia (Hht)

Everything about Hereditary Hemorrhagic Telangiectasia (Hht)

Author: Dr Cade Josue

Publisher: Independently Published

Published: 2024-05

Total Pages: 0

ISBN-13:

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UNLOCK THE SECRETS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) In this comprehensive guide, delve into the intricate world of Hereditary Hemorrhagic Telangiectasia (HHT) and discover a wealth of knowledge crucial for patients, caregivers, and healthcare professionals. Discover the genetic blueprint behind HHT. Decode the symptoms before they escalate. Navigate treatment options for optimal outcomes. Uncover the emotional journey of HHT patients. Explore life strategies for managing HHT effectively. Gain insights into pediatric HHT challenges and solutions. Empower yourself with resources for HHT support. Bridge the gap between genetics and lifestyle choices. Advocate for awareness and action in the HHT community. Prepare for family planning with HHT considerations. Demystify complications associated with HHT. Navigate the psychological impact of living with HHT. Stay informed about ongoing HHT research and breakthroughs. Empathize with real-life stories of HHT resilience. Access expert guidance for HHT management and care. Join the movement for HHT awareness and advocacy. Shape the future of HHT treatment through knowledge and action. TABLE OF CONTENTS HIGHLIGHTS: Understanding HHT: Unravel the complexities of this genetic disorder and its various manifestations. Genetics and Origins: Dive deep into the genetic underpinnings and causal factors of HHT. Symptoms and Diagnosis: Learn to recognize the signs early for timely intervention. Treatment Alternatives: Explore cutting-edge therapies and management strategies for HHT. Patient Perspectives: Gain insights from those living with HHT and their experiences. Future Directions: Stay abreast of the latest research and advancements in HHT care. WHY YOU NEED THIS BOOK: This book is not just a resource; it's a lifeline for anyone touched by HHT. Whether you're a patient, caregiver, or healthcare professional, the insights, strategies, and stories shared here will empower you to navigate HHT with confidence and resilience. Don't wait for HHT to dictate your journey. Equip yourself with knowledge, understanding, and actionable strategies. Your journey to empowered HHT management starts here.


Book Synopsis Everything about Hereditary Hemorrhagic Telangiectasia (Hht) by : Dr Cade Josue

Download or read book Everything about Hereditary Hemorrhagic Telangiectasia (Hht) written by Dr Cade Josue and published by Independently Published. This book was released on 2024-05 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: UNLOCK THE SECRETS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) In this comprehensive guide, delve into the intricate world of Hereditary Hemorrhagic Telangiectasia (HHT) and discover a wealth of knowledge crucial for patients, caregivers, and healthcare professionals. Discover the genetic blueprint behind HHT. Decode the symptoms before they escalate. Navigate treatment options for optimal outcomes. Uncover the emotional journey of HHT patients. Explore life strategies for managing HHT effectively. Gain insights into pediatric HHT challenges and solutions. Empower yourself with resources for HHT support. Bridge the gap between genetics and lifestyle choices. Advocate for awareness and action in the HHT community. Prepare for family planning with HHT considerations. Demystify complications associated with HHT. Navigate the psychological impact of living with HHT. Stay informed about ongoing HHT research and breakthroughs. Empathize with real-life stories of HHT resilience. Access expert guidance for HHT management and care. Join the movement for HHT awareness and advocacy. Shape the future of HHT treatment through knowledge and action. TABLE OF CONTENTS HIGHLIGHTS: Understanding HHT: Unravel the complexities of this genetic disorder and its various manifestations. Genetics and Origins: Dive deep into the genetic underpinnings and causal factors of HHT. Symptoms and Diagnosis: Learn to recognize the signs early for timely intervention. Treatment Alternatives: Explore cutting-edge therapies and management strategies for HHT. Patient Perspectives: Gain insights from those living with HHT and their experiences. Future Directions: Stay abreast of the latest research and advancements in HHT care. WHY YOU NEED THIS BOOK: This book is not just a resource; it's a lifeline for anyone touched by HHT. Whether you're a patient, caregiver, or healthcare professional, the insights, strategies, and stories shared here will empower you to navigate HHT with confidence and resilience. Don't wait for HHT to dictate your journey. Equip yourself with knowledge, understanding, and actionable strategies. Your journey to empowered HHT management starts here.

Just One of the Kids

Just One of the Kids

Author: Kay Harris Kriegsman

Publisher: JHU Press

Published: 2013-05-31

Total Pages: 241

ISBN-13: 1421409305

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Supporting and encouraging all members of the family when a child has a physical disability. If you have a child with a physical disability, how can you plan your family’s life in a way that is inclusive for everyone? What can you do to create a family where every member pulls his or her own weight (in appropriate measure), meets challenges, and has moments in the spotlight along the way? Most parents of a child who has a physical disability want their child to have fun, be responsible, make friends, and take acceptable risks—in short, to feel like “just one of the kids”—and they want to make sure that the needs of the whole family are met, too. Just One of the Kids is designed to help parents focus not on what could have been but instead on what can be, so that they, their children, and the grandparents thrive as individuals and as a family. The advice from psychologists Kay Harris Kriegsman and Sara Palmer is valuable for any family with children who have a physical disability, from any cause. Their warm and encouraging book is full of family stories, tips, and tools. Parents of children with physical disabilities can help them develop the skills needed to meet life’s challenges and launch into independence. Parents, building on that foundation and acknowledging each person’s contributions, interests, and aspirations, create an inclusive and resilient family.


Book Synopsis Just One of the Kids by : Kay Harris Kriegsman

Download or read book Just One of the Kids written by Kay Harris Kriegsman and published by JHU Press. This book was released on 2013-05-31 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Supporting and encouraging all members of the family when a child has a physical disability. If you have a child with a physical disability, how can you plan your family’s life in a way that is inclusive for everyone? What can you do to create a family where every member pulls his or her own weight (in appropriate measure), meets challenges, and has moments in the spotlight along the way? Most parents of a child who has a physical disability want their child to have fun, be responsible, make friends, and take acceptable risks—in short, to feel like “just one of the kids”—and they want to make sure that the needs of the whole family are met, too. Just One of the Kids is designed to help parents focus not on what could have been but instead on what can be, so that they, their children, and the grandparents thrive as individuals and as a family. The advice from psychologists Kay Harris Kriegsman and Sara Palmer is valuable for any family with children who have a physical disability, from any cause. Their warm and encouraging book is full of family stories, tips, and tools. Parents of children with physical disabilities can help them develop the skills needed to meet life’s challenges and launch into independence. Parents, building on that foundation and acknowledging each person’s contributions, interests, and aspirations, create an inclusive and resilient family.

Spinal Cord Injury

Spinal Cord Injury

Author: Sara Palmer

Publisher:

Published: 2000

Total Pages: 0

ISBN-13: 9780801863530

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"A comprehensive resource for coping with medical, emotional, and practical challenges."--Cover.


Book Synopsis Spinal Cord Injury by : Sara Palmer

Download or read book Spinal Cord Injury written by Sara Palmer and published by . This book was released on 2000 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A comprehensive resource for coping with medical, emotional, and practical challenges."--Cover.

When Your Spouse Has a Stroke

When Your Spouse Has a Stroke

Author: Sara Palmer

Publisher: Johns Hopkins University Press

Published: 2011-04-15

Total Pages: 0

ISBN-13: 9780801898877

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A stroke can alter two people's lives in an instant. For the person who has had a stroke, simple tasks suddenly become difficult or impossible. For that person's partner, life seems to revolve mostly around the stroke survivor's needs. Such a drastic change naturally requires making many, sometimes taxing, adjustments. In this book, two experts in stroke recovery help couples deal with the impact of stroke on their lives and their relationship. Drs. Sara and Jeffrey Palmer explain how to overcome three major challenges: • providing quality care for your partner • maintaining or rebuilding your relationship • caring for yourself as an individual The book invites you into the lives of real couples who are themselves coping with these challenges. Their experiences model how you can improve essential aspects of your relationship, including communication, roles and responsibilities, and sexuality. A list of practical tips summarizes each chapter, providing a handy reference guide to meeting each day's challenges. More than just a discussion of the medical and practical aspects of stroke and stroke recovery, this book focuses on the emotional, psychological, and social consequences of stroke and the deeply personal side of caregiving. When Your Spouse Has a Stroke will relieve your burden and strengthen your partnership.


Book Synopsis When Your Spouse Has a Stroke by : Sara Palmer

Download or read book When Your Spouse Has a Stroke written by Sara Palmer and published by Johns Hopkins University Press. This book was released on 2011-04-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A stroke can alter two people's lives in an instant. For the person who has had a stroke, simple tasks suddenly become difficult or impossible. For that person's partner, life seems to revolve mostly around the stroke survivor's needs. Such a drastic change naturally requires making many, sometimes taxing, adjustments. In this book, two experts in stroke recovery help couples deal with the impact of stroke on their lives and their relationship. Drs. Sara and Jeffrey Palmer explain how to overcome three major challenges: • providing quality care for your partner • maintaining or rebuilding your relationship • caring for yourself as an individual The book invites you into the lives of real couples who are themselves coping with these challenges. Their experiences model how you can improve essential aspects of your relationship, including communication, roles and responsibilities, and sexuality. A list of practical tips summarizes each chapter, providing a handy reference guide to meeting each day's challenges. More than just a discussion of the medical and practical aspects of stroke and stroke recovery, this book focuses on the emotional, psychological, and social consequences of stroke and the deeply personal side of caregiving. When Your Spouse Has a Stroke will relieve your burden and strengthen your partnership.

Midnight in the Garden of Good and Evil

Midnight in the Garden of Good and Evil

Author: John Berendt

Publisher: Random House

Published: 1994-01-13

Total Pages: 417

ISBN-13: 0679429220

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NATIONAL BESTSELLER • A modern classic of true crime, set in a most beguiling Southern city—now in a 30th anniversary edition with a new afterword by the author “Elegant and wicked . . . might be the first true-crime book that makes the reader want to book a bed and breakfast for an extended weekend at the scene of the crime.”—The New York Times Book Review Shots rang out in Savannah’s grandest mansion in the misty, early morning hours of May 2, 1981. Was it murder or self-defense? For nearly a decade, the shooting and its aftermath reverberated throughout this hauntingly beautiful city of moss-hung oaks and shaded squares. In this sharply observed, suspenseful, and witty narrative, John Berendt skillfully interweaves a hugely entertaining first-person account of life in this isolated remnant of the Old South with the unpredictable twists and turns of a landmark murder case. It is a spellbinding story peopled by a gallery of remarkable characters: the well-bred society ladies of the Married Woman’s Card Club; the turbulent young gigolo; the hapless recluse who owns a bottle of poison so powerful it could kill every man, woman, and child in Savannah; the aging and profane Southern belle who is the “soul of pampered self-absorption”; the uproariously funny drag queen; the acerbic and arrogant antiques dealer; the sweet-talking, piano-playing con artist; young people dancing the minuet at the black debutante ball; and Minerva, the voodoo priestess who works her magic in the graveyard at midnight. These and other Savannahians act as a Greek chorus, with Berendt revealing the alliances, hostilities, and intrigues that thrive in a town where everyone knows everyone else. Brilliantly conceived and masterfully written, Midnight in the Garden of Good and Evil is a sublime and seductive reading experience.


Book Synopsis Midnight in the Garden of Good and Evil by : John Berendt

Download or read book Midnight in the Garden of Good and Evil written by John Berendt and published by Random House. This book was released on 1994-01-13 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: NATIONAL BESTSELLER • A modern classic of true crime, set in a most beguiling Southern city—now in a 30th anniversary edition with a new afterword by the author “Elegant and wicked . . . might be the first true-crime book that makes the reader want to book a bed and breakfast for an extended weekend at the scene of the crime.”—The New York Times Book Review Shots rang out in Savannah’s grandest mansion in the misty, early morning hours of May 2, 1981. Was it murder or self-defense? For nearly a decade, the shooting and its aftermath reverberated throughout this hauntingly beautiful city of moss-hung oaks and shaded squares. In this sharply observed, suspenseful, and witty narrative, John Berendt skillfully interweaves a hugely entertaining first-person account of life in this isolated remnant of the Old South with the unpredictable twists and turns of a landmark murder case. It is a spellbinding story peopled by a gallery of remarkable characters: the well-bred society ladies of the Married Woman’s Card Club; the turbulent young gigolo; the hapless recluse who owns a bottle of poison so powerful it could kill every man, woman, and child in Savannah; the aging and profane Southern belle who is the “soul of pampered self-absorption”; the uproariously funny drag queen; the acerbic and arrogant antiques dealer; the sweet-talking, piano-playing con artist; young people dancing the minuet at the black debutante ball; and Minerva, the voodoo priestess who works her magic in the graveyard at midnight. These and other Savannahians act as a Greek chorus, with Berendt revealing the alliances, hostilities, and intrigues that thrive in a town where everyone knows everyone else. Brilliantly conceived and masterfully written, Midnight in the Garden of Good and Evil is a sublime and seductive reading experience.

Miles To Go Before I Sleep

Miles To Go Before I Sleep

Author: Jackie Nink Pflug

Publisher: Simon and Schuster

Published: 2012-04-13

Total Pages: 269

ISBN-13: 1592859593

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Jackie Nink Pflug's gripping true story of her experience during the terrorist hijacking, and how she recuperated from this devastating trauma. " ... her memoir is an inspirational chronicle of personal tragedy surmounted by raw courage" - Publishers Weekly Jackie Nink Pflug's gripping true story of courage and inspiration, told from a survivor's perspective, with a new preface written by the author. Ms. Pflug, who was shot and thrown onto the tarmac during the hijacking of EgyptAir Flight 648, tells her story and the lessons learned as she recuperated from this devastating trauma.


Book Synopsis Miles To Go Before I Sleep by : Jackie Nink Pflug

Download or read book Miles To Go Before I Sleep written by Jackie Nink Pflug and published by Simon and Schuster. This book was released on 2012-04-13 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: Jackie Nink Pflug's gripping true story of her experience during the terrorist hijacking, and how she recuperated from this devastating trauma. " ... her memoir is an inspirational chronicle of personal tragedy surmounted by raw courage" - Publishers Weekly Jackie Nink Pflug's gripping true story of courage and inspiration, told from a survivor's perspective, with a new preface written by the author. Ms. Pflug, who was shot and thrown onto the tarmac during the hijacking of EgyptAir Flight 648, tells her story and the lessons learned as she recuperated from this devastating trauma.

School, Family, and Community Partnerships

School, Family, and Community Partnerships

Author: Joyce L. Epstein

Publisher: Corwin Press

Published: 2018-07-19

Total Pages: 518

ISBN-13: 1483320014

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Strengthen programs of family and community engagement to promote equity and increase student success! When schools, families, and communities collaborate and share responsibility for students′ education, more students succeed in school. Based on 30 years of research and fieldwork, the fourth edition of the bestseller School, Family, and Community Partnerships: Your Handbook for Action, presents tools and guidelines to help develop more effective and more equitable programs of family and community engagement. Written by a team of well-known experts, it provides a theory and framework of six types of involvement for action; up-to-date research on school, family, and community collaboration; and new materials for professional development and on-going technical assistance. Readers also will find: Examples of best practices on the six types of involvement from preschools, and elementary, middle, and high schools Checklists, templates, and evaluations to plan goal-linked partnership programs and assess progress CD-ROM with slides and notes for two presentations: A new awareness session to orient colleagues on the major components of a research-based partnership program, and a full One-Day Team Training Workshop to prepare school teams to develop their partnership programs. As a foundational text, this handbook demonstrates a proven approach to implement and sustain inclusive, goal-linked programs of partnership. It shows how a good partnership program is an essential component of good school organization and school improvement for student success. This book will help every district and all schools strengthen and continually improve their programs of family and community engagement.


Book Synopsis School, Family, and Community Partnerships by : Joyce L. Epstein

Download or read book School, Family, and Community Partnerships written by Joyce L. Epstein and published by Corwin Press. This book was released on 2018-07-19 with total page 518 pages. Available in PDF, EPUB and Kindle. Book excerpt: Strengthen programs of family and community engagement to promote equity and increase student success! When schools, families, and communities collaborate and share responsibility for students′ education, more students succeed in school. Based on 30 years of research and fieldwork, the fourth edition of the bestseller School, Family, and Community Partnerships: Your Handbook for Action, presents tools and guidelines to help develop more effective and more equitable programs of family and community engagement. Written by a team of well-known experts, it provides a theory and framework of six types of involvement for action; up-to-date research on school, family, and community collaboration; and new materials for professional development and on-going technical assistance. Readers also will find: Examples of best practices on the six types of involvement from preschools, and elementary, middle, and high schools Checklists, templates, and evaluations to plan goal-linked partnership programs and assess progress CD-ROM with slides and notes for two presentations: A new awareness session to orient colleagues on the major components of a research-based partnership program, and a full One-Day Team Training Workshop to prepare school teams to develop their partnership programs. As a foundational text, this handbook demonstrates a proven approach to implement and sustain inclusive, goal-linked programs of partnership. It shows how a good partnership program is an essential component of good school organization and school improvement for student success. This book will help every district and all schools strengthen and continually improve their programs of family and community engagement.

Ferri's Clinical Advisor 2019 E-Book

Ferri's Clinical Advisor 2019 E-Book

Author: Fred F. Ferri

Publisher: Elsevier Health Sciences

Published: 2018-05-26

Total Pages: 7409

ISBN-13: 0323550762

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Updated annually with the latest developments in diagnosis and treatment recommendations, Ferri’s Clinical Advisor uses the popular "5 books in 1" format to organize vast amounts of information in a clinically relevant, user-friendly manner. This efficient, intuitive format provides quick access to answers on more than 900 common medical conditions, including diseases and disorders, differential diagnoses, and laboratory tests – all updated by experts in key clinical fields. Updated algorithms and current clinical practice guidelines help you keep pace with the speed of modern medicine. Contains significant updates throughout, with more than 500 new figures, tables, and boxes added to this new edition. Features 17 all-new topics including opioid overdose, obesity-Hypoventilation syndrome, acute pelvic pain in women, new-onset seizures, and eosinophilic esophagitis, among many others. Provides current ICD-10 insurance billing codes to help expedite insurance reimbursements. Includes cross-references, outlines, bullets, tables, boxes, and algorithms to help you navigate a wealth of clinical information. Offers access to exclusive online content: more than 90 additional topics; new algorithms, images, and tables; EBM boxes; patient teaching guides, color images, and more.


Book Synopsis Ferri's Clinical Advisor 2019 E-Book by : Fred F. Ferri

Download or read book Ferri's Clinical Advisor 2019 E-Book written by Fred F. Ferri and published by Elsevier Health Sciences. This book was released on 2018-05-26 with total page 7409 pages. Available in PDF, EPUB and Kindle. Book excerpt: Updated annually with the latest developments in diagnosis and treatment recommendations, Ferri’s Clinical Advisor uses the popular "5 books in 1" format to organize vast amounts of information in a clinically relevant, user-friendly manner. This efficient, intuitive format provides quick access to answers on more than 900 common medical conditions, including diseases and disorders, differential diagnoses, and laboratory tests – all updated by experts in key clinical fields. Updated algorithms and current clinical practice guidelines help you keep pace with the speed of modern medicine. Contains significant updates throughout, with more than 500 new figures, tables, and boxes added to this new edition. Features 17 all-new topics including opioid overdose, obesity-Hypoventilation syndrome, acute pelvic pain in women, new-onset seizures, and eosinophilic esophagitis, among many others. Provides current ICD-10 insurance billing codes to help expedite insurance reimbursements. Includes cross-references, outlines, bullets, tables, boxes, and algorithms to help you navigate a wealth of clinical information. Offers access to exclusive online content: more than 90 additional topics; new algorithms, images, and tables; EBM boxes; patient teaching guides, color images, and more.

Maneuver and Firepower

Maneuver and Firepower

Author: John B. Wilson

Publisher:

Published: 1998

Total Pages: 496

ISBN-13:

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Book Synopsis Maneuver and Firepower by : John B. Wilson

Download or read book Maneuver and Firepower written by John B. Wilson and published by . This book was released on 1998 with total page 496 pages. Available in PDF, EPUB and Kindle. Book excerpt: