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Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Book Synopsis Mallory's 65 Roses by : Diane Shader Smith
Download or read book Mallory's 65 Roses written by Diane Shader Smith and published by . This book was released on 1997-01-01 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Book Synopsis Salt in My Soul by : Mallory Smith
Download or read book Salt in My Soul written by Mallory Smith and published by Random House. This book was released on 2019-03-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Book Synopsis Taking Cystic Fibrosis to School by : Cynthia S. Henry
Download or read book Taking Cystic Fibrosis to School written by Cynthia S. Henry and published by Jayjo Books. This book was released on 2000 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.
Book Synopsis Diary of a CF Kid by : Tim Sweeney
Download or read book Diary of a CF Kid written by Tim Sweeney and published by Independently Published. This book was released on 2021-04-19 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Book Synopsis Salt in My Soul by : Mallory Smith
Download or read book Salt in My Soul written by Mallory Smith and published by Random House Trade Paperbacks. This book was released on 2020-01-28 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
While governing bodies have mandated that all students have the right to an education, with disabled students treated to the same rights and opportunities as non-disabled students, policymakers do not always agree on what all-inclusive education should look like. Challenges Surrounding the Education of Children with Chronic Diseases explores the needs that children with certain conditions—such as diabetes, cancer, juvenile idiopathic arthritis, and inflammatory bowel disease—might have in the classroom. Featuring coverage on a wide range of topics relating to pre-service teacher training, school administrators’ policies, and the experiences of children with chronic health conditions, this book is an essential reference source for teachers, educators, school administrators, policymakers, and anyone else concerned with inclusive educational rights for all students.
Book Synopsis Challenges Surrounding the Education of Children with Chronic Diseases by : Gordon, Maria
Download or read book Challenges Surrounding the Education of Children with Chronic Diseases written by Gordon, Maria and published by IGI Global. This book was released on 2015-10-02 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: While governing bodies have mandated that all students have the right to an education, with disabled students treated to the same rights and opportunities as non-disabled students, policymakers do not always agree on what all-inclusive education should look like. Challenges Surrounding the Education of Children with Chronic Diseases explores the needs that children with certain conditions—such as diabetes, cancer, juvenile idiopathic arthritis, and inflammatory bowel disease—might have in the classroom. Featuring coverage on a wide range of topics relating to pre-service teacher training, school administrators’ policies, and the experiences of children with chronic health conditions, this book is an essential reference source for teachers, educators, school administrators, policymakers, and anyone else concerned with inclusive educational rights for all students.
"This is a great resource for general and special education teachers, administrators, and paraprofessionals looking for answers when working with students with special needs. What a wonderful guide for supporting our day-to-day work." —Heidi Rinke, Special Education Teacher Wheaton Area Schools, MN The essential guide for teaching effectively in the inclusive classroom! Through IDEA 2004, students who are eligible to receive services to meet their special needs are guaranteed certain rights and benefits in the general education classroom. The third edition of this user-friendly handbook offers easy-to-implement strategies, recommendations, and answers to questions that help general education classroom teachers provide the best support for all students. In addition to an all-new section that outlines the basics of the Response to Intervention (RTI) model, this resource presents research-based intervention ideas to sustain student progress and describes: Instructional approaches for the 13 recognized disability categories under which students may be eligible to receive special education services An easy to follow, step-by-step explanation of the special education process Ready-to-use classroom accommodation and modification options to ensure appropriate student access to the general education curriculum The transition process for students with special needs Accessible, up-to-date, and comprehensive, The General Educator′s Guide to Special Education provides much-needed guidance to new and veteran teachers as they meet the diverse needs of their students.
Book Synopsis The General Educator′s Guide to Special Education by : Jody L. Maanum
Download or read book The General Educator′s Guide to Special Education written by Jody L. Maanum and published by Corwin Press. This book was released on 2009-03-26 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This is a great resource for general and special education teachers, administrators, and paraprofessionals looking for answers when working with students with special needs. What a wonderful guide for supporting our day-to-day work." —Heidi Rinke, Special Education Teacher Wheaton Area Schools, MN The essential guide for teaching effectively in the inclusive classroom! Through IDEA 2004, students who are eligible to receive services to meet their special needs are guaranteed certain rights and benefits in the general education classroom. The third edition of this user-friendly handbook offers easy-to-implement strategies, recommendations, and answers to questions that help general education classroom teachers provide the best support for all students. In addition to an all-new section that outlines the basics of the Response to Intervention (RTI) model, this resource presents research-based intervention ideas to sustain student progress and describes: Instructional approaches for the 13 recognized disability categories under which students may be eligible to receive special education services An easy to follow, step-by-step explanation of the special education process Ready-to-use classroom accommodation and modification options to ensure appropriate student access to the general education curriculum The transition process for students with special needs Accessible, up-to-date, and comprehensive, The General Educator′s Guide to Special Education provides much-needed guidance to new and veteran teachers as they meet the diverse needs of their students.
This collection of one girl's real, unflinching diary entries about slowly dying of a terminal illness is an unparalleled exploration of the human spirit and what it means to truly live. Many of the feelings I write about are too difficult to share while I'm alive, so I'm keeping everything in my journal password-protected until the end. Mallory Smith was no ordinary girl, and this is no ordinary story. At age three, Mallory was diagnosed with cystic fibrosis--a disease that attacks the internal organs and would eventually kill her. Despite living on borrowed time, Mallory pursued her passions: volleyball; writing; the environment; her boyfriend, family, and friends. Most importantly, every day she chose to embody the mantra "live happy." Mallory also had her struggles--everything from love and sex to living with illness and just being a human on this planet. And she chronicled every bit of it, writing thousands of diary entries before her death in her twenties. This is the poignant, true story of a young woman who refused to be defined by chronic illness. Her light and her life are shared here in her own words to encourage everyone to live life to the fullest, as she did, even as she was dying.
Book Synopsis Diary of a Dying Girl by : Mallory Smith
Download or read book Diary of a Dying Girl written by Mallory Smith and published by Random House Books for Young Readers. This book was released on 2024-05-07 with total page 393 pages. Available in PDF, EPUB and Kindle. Book excerpt: This collection of one girl's real, unflinching diary entries about slowly dying of a terminal illness is an unparalleled exploration of the human spirit and what it means to truly live. Many of the feelings I write about are too difficult to share while I'm alive, so I'm keeping everything in my journal password-protected until the end. Mallory Smith was no ordinary girl, and this is no ordinary story. At age three, Mallory was diagnosed with cystic fibrosis--a disease that attacks the internal organs and would eventually kill her. Despite living on borrowed time, Mallory pursued her passions: volleyball; writing; the environment; her boyfriend, family, and friends. Most importantly, every day she chose to embody the mantra "live happy." Mallory also had her struggles--everything from love and sex to living with illness and just being a human on this planet. And she chronicled every bit of it, writing thousands of diary entries before her death in her twenties. This is the poignant, true story of a young woman who refused to be defined by chronic illness. Her light and her life are shared here in her own words to encourage everyone to live life to the fullest, as she did, even as she was dying.
Book Synopsis Children with Complex Medical Issues in Schools by : Christine L. Castillo
Download or read book Children with Complex Medical Issues in Schools written by Christine L. Castillo and published by Springer Publishing Company. This book was released on 2008-04-14 with total page 546 pages. Available in PDF, EPUB and Kindle. Book excerpt: Print+CourseSmart
In recent years the escalating costs of health care have caused managed care programs to shift the delivery of pediatric psychological services away from specialized medical centers and into primary care and school settings. One result has been a radical expansion of school psychology into issues of clinical intervention, health promotion, and the assessment of psychotropic medications. School psychologists are now expected to either deliver or (more likely) to provide consultation regarding a wide variety of pediatric psychological services. Because this is a recent phenomenon, very few school-based psychologists or allied health practitioners (school counselors and social workers) have received training in pediatric psychology. The mission of this book is to provide them with a comprehensive and authoritative guide to their newly acquired responsibilities in such areas as psychotherapy, psychopharmacology, health promotion, and prevention of disease. This book is appropriate for anyone concerned with issues of pediatric psychology in school settings: school psychologists, pediatric psychologists, clinical child psychologists, as well as pediatricians and child psychiatrists.
Book Synopsis Handbook of Pediatric Psychology in School Settings by : Ronald T. Brown
Download or read book Handbook of Pediatric Psychology in School Settings written by Ronald T. Brown and published by Routledge. This book was released on 2003-09-12 with total page 840 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years the escalating costs of health care have caused managed care programs to shift the delivery of pediatric psychological services away from specialized medical centers and into primary care and school settings. One result has been a radical expansion of school psychology into issues of clinical intervention, health promotion, and the assessment of psychotropic medications. School psychologists are now expected to either deliver or (more likely) to provide consultation regarding a wide variety of pediatric psychological services. Because this is a recent phenomenon, very few school-based psychologists or allied health practitioners (school counselors and social workers) have received training in pediatric psychology. The mission of this book is to provide them with a comprehensive and authoritative guide to their newly acquired responsibilities in such areas as psychotherapy, psychopharmacology, health promotion, and prevention of disease. This book is appropriate for anyone concerned with issues of pediatric psychology in school settings: school psychologists, pediatric psychologists, clinical child psychologists, as well as pediatricians and child psychiatrists.
