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Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.
Book Synopsis Patients as Policy Actors by : Beatrix Rebecca Hoffman
Download or read book Patients as Policy Actors written by Beatrix Rebecca Hoffman and published by Rutgers University Press. This book was released on 2011 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.
Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.
Book Synopsis Patients as Policy Actors by : Beatrix Hoffman
Download or read book Patients as Policy Actors written by Beatrix Hoffman and published by Rutgers University Press. This book was released on 2011-07-20 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.
The chapters in this book explore the patient safety managerial structures that exist in countries where there are developed patient safety infrastructures and cultures. The legal structures of these countries are explored and related to major in-country patient safety issues in order to draw comparisons and conclusions on patient safety.
Book Synopsis Patient Safety, Law Policy and Practice by : John Tingle
Download or read book Patient Safety, Law Policy and Practice written by John Tingle and published by Taylor & Francis. This book was released on 2011-03-02 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: The chapters in this book explore the patient safety managerial structures that exist in countries where there are developed patient safety infrastructures and cultures. The legal structures of these countries are explored and related to major in-country patient safety issues in order to draw comparisons and conclusions on patient safety.
Current public health literature suggests that the mentally ill may represent as much as half of the smokers in America. In Smoking Privileges, Laura D. Hirshbein highlights the complex problem of mentally ill smokers, placing it in the context of changes in psychiatry, in the tobacco and pharmaceutical industries, and in the experience of mental illness over the last century.Hirshbein, a medical historian and clinical psychiatrist, first shows how cigarettes functioned in the old system of psychiatric care, revealing that mental health providers long ago noted the important role of cigarettes within treatment settings and the strong attachment of many mentally ill individuals to their cigarettes. Hirshbein also relates how, as the sale of cigarettes dwindled, the tobacco industry quietly researched alternative markets, including those who smoked for psychological reasons, ultimately discovering connections between mental states and smoking, and the addictive properties of nicotine. However, Smoking Privileges warns that to see smoking among the mentally ill only in terms of addiction misses how this behavior fits into the broader context of their lives. Cigarettes not only helped structure their relationships with other people, but also have been important objects of attachment. Indeed, even after psychiatric hospitals belatedly instituted smoking bans in the late twentieth century, smoking remained an integral part of life for many seriously ill patients, with implications not only for public health but for the ongoing treatment of psychiatric disorders. Making matters worse, well-meaning tobacco-control policies have had the unintended consequence of further stigmatizing the mentally ill.A groundbreaking look at a little-known public health problem, Smoking Privileges illuminates the intersection of smoking and mental illness, and offers a new perspective on public policy regarding cigarettes.
Book Synopsis Smoking Privileges by : Laura D. Hirshbein
Download or read book Smoking Privileges written by Laura D. Hirshbein and published by Rutgers University Press. This book was released on 2015-01-31 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: Current public health literature suggests that the mentally ill may represent as much as half of the smokers in America. In Smoking Privileges, Laura D. Hirshbein highlights the complex problem of mentally ill smokers, placing it in the context of changes in psychiatry, in the tobacco and pharmaceutical industries, and in the experience of mental illness over the last century.Hirshbein, a medical historian and clinical psychiatrist, first shows how cigarettes functioned in the old system of psychiatric care, revealing that mental health providers long ago noted the important role of cigarettes within treatment settings and the strong attachment of many mentally ill individuals to their cigarettes. Hirshbein also relates how, as the sale of cigarettes dwindled, the tobacco industry quietly researched alternative markets, including those who smoked for psychological reasons, ultimately discovering connections between mental states and smoking, and the addictive properties of nicotine. However, Smoking Privileges warns that to see smoking among the mentally ill only in terms of addiction misses how this behavior fits into the broader context of their lives. Cigarettes not only helped structure their relationships with other people, but also have been important objects of attachment. Indeed, even after psychiatric hospitals belatedly instituted smoking bans in the late twentieth century, smoking remained an integral part of life for many seriously ill patients, with implications not only for public health but for the ongoing treatment of psychiatric disorders. Making matters worse, well-meaning tobacco-control policies have had the unintended consequence of further stigmatizing the mentally ill.A groundbreaking look at a little-known public health problem, Smoking Privileges illuminates the intersection of smoking and mental illness, and offers a new perspective on public policy regarding cigarettes.
Guide to U.S. Health and Health Care Policy provides the analytical connections showing students how issues and actions are translated into public policies and institutions for resolving or managing health care issues and crises, such as the recent attempt to reform the national health care system. The Guide highlights the decision-making cycle that requires the cooperation of government, business, and an informed citizenry in order to achieve a comprehensive approach to advancing the nation’s health care policies. Through 30 topical, operational, and relational essays, the book addresses the development of the U.S. health care system and policies, the federal agencies and public and private organizations that frame and administer those policies, and the challenges of balancing the nation’s health care needs with the rising costs of medical research, cost-effective treatment, and adequate health insurance. Key Features: The 30 topical essays investigate the fundamental political, social, economic, and procedural initiatives that drive health and health care policy decisions affecting Americans at the local, regional, and national levels Essential themes traced throughout the chapters include providing access to health care, national and international intervention, nutrition and health, human and financial resource allocation, freedom of religion versus public policy, discrimination and health care policy, universal health care coverage, private health care versus publicly funded health care, and the immediate and long-term costs associated with disease prevention, treatment, and health maintenance A Glossary of Key Health Care Policy Terms and Events, a selected Master Bibliography, and a thorough Index are included. This must-have reference for political science and public policy students who seek to understand the issues affecting health care policy in the U.S. is suitable for academic, public, high school, government, and professional libraries.
Book Synopsis Guide to U.S. Health and Health Care Policy by : Thomas R. Oliver
Download or read book Guide to U.S. Health and Health Care Policy written by Thomas R. Oliver and published by CQ Press. This book was released on 2014-09-03 with total page 504 pages. Available in PDF, EPUB and Kindle. Book excerpt: Guide to U.S. Health and Health Care Policy provides the analytical connections showing students how issues and actions are translated into public policies and institutions for resolving or managing health care issues and crises, such as the recent attempt to reform the national health care system. The Guide highlights the decision-making cycle that requires the cooperation of government, business, and an informed citizenry in order to achieve a comprehensive approach to advancing the nation’s health care policies. Through 30 topical, operational, and relational essays, the book addresses the development of the U.S. health care system and policies, the federal agencies and public and private organizations that frame and administer those policies, and the challenges of balancing the nation’s health care needs with the rising costs of medical research, cost-effective treatment, and adequate health insurance. Key Features: The 30 topical essays investigate the fundamental political, social, economic, and procedural initiatives that drive health and health care policy decisions affecting Americans at the local, regional, and national levels Essential themes traced throughout the chapters include providing access to health care, national and international intervention, nutrition and health, human and financial resource allocation, freedom of religion versus public policy, discrimination and health care policy, universal health care coverage, private health care versus publicly funded health care, and the immediate and long-term costs associated with disease prevention, treatment, and health maintenance A Glossary of Key Health Care Policy Terms and Events, a selected Master Bibliography, and a thorough Index are included. This must-have reference for political science and public policy students who seek to understand the issues affecting health care policy in the U.S. is suitable for academic, public, high school, government, and professional libraries.
If the European political space has been extensively explored, research has remained all too often focused on the institutions of the European Union and the Council of Europe rather than on the actors who make Europe. This dictionary brings a new angle to scholarship on Europe by systematically investigating its actors: those who work within the institutions or in close contact with them; those who are the targets of European policies; those in the name of whom reforms are carried out; those who promote Europe and those who oppose it. It showcases a comprehensive, interdisciplinary approach that bridges the usual separation between the European Union and the Council of Europe. In each entry, contributors selected among the leading specialists in their fields of research present the state of the art and the most current research perspectives on European actors. Students, teachers and researchers with an interest in Europe will find this volume to be a valuable work of reference and a source of new and stimulating ideas and perspectives on Europe. More broadly, the dictionary will appeal to ‘professionals of Europe’ eager to gain insights into their working environment as well as to readers interested in understanding Europe through its actors.
Book Synopsis Dictionary of European actors by : Elisabeth Lambert Abdelgawad
Download or read book Dictionary of European actors written by Elisabeth Lambert Abdelgawad and published by Primento. This book was released on 2015-04-07 with total page 406 pages. Available in PDF, EPUB and Kindle. Book excerpt: If the European political space has been extensively explored, research has remained all too often focused on the institutions of the European Union and the Council of Europe rather than on the actors who make Europe. This dictionary brings a new angle to scholarship on Europe by systematically investigating its actors: those who work within the institutions or in close contact with them; those who are the targets of European policies; those in the name of whom reforms are carried out; those who promote Europe and those who oppose it. It showcases a comprehensive, interdisciplinary approach that bridges the usual separation between the European Union and the Council of Europe. In each entry, contributors selected among the leading specialists in their fields of research present the state of the art and the most current research perspectives on European actors. Students, teachers and researchers with an interest in Europe will find this volume to be a valuable work of reference and a source of new and stimulating ideas and perspectives on Europe. More broadly, the dictionary will appeal to ‘professionals of Europe’ eager to gain insights into their working environment as well as to readers interested in understanding Europe through its actors.
Bringing together an international selection of leading scholars and representatives from patients’ organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.
Book Synopsis The Public Shaping of Medical Research by : Peter Wehling
Download or read book The Public Shaping of Medical Research written by Peter Wehling and published by Routledge. This book was released on 2014-11-27 with total page 309 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bringing together an international selection of leading scholars and representatives from patients’ organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.
This book provides a broad overview of rare disease drug development. It offers unique insights from various perspectives, including third-party capital providers, caregivers, patient advocacy groups, drug development professionals, marketing and commercial experts, and patients. A unique reference, the book begins with narratives on the many challenges faced by rare disease patient and their caregivers. Subsequent chapters underscore the critical, multidimensional role of patient advocacy groups and the novel approaches to related clinical trials, investment decisions, and the optimization of rare disease registries. The book addresses various rare disease drug development processes by disciplines such as oncology, hematology, pediatrics, and gene therapy. Chapters then address the operational aspects of drug development, including approval processes, development accelerations, and market access strategies. The book concludes with reflections on the authors' case for real-world data and evidence generation in orphan medicinal drug development. Rare Disease Drug Development is an expertly written text optimized for biopharmaceutical R&D experts, commercial experts, third-party capital providers, patient advocacy groups, patients, and caregivers.
Book Synopsis Rare Disease Drug Development by : Raymond A. Huml
Download or read book Rare Disease Drug Development written by Raymond A. Huml and published by Springer Nature. This book was released on 2021-11-08 with total page 418 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a broad overview of rare disease drug development. It offers unique insights from various perspectives, including third-party capital providers, caregivers, patient advocacy groups, drug development professionals, marketing and commercial experts, and patients. A unique reference, the book begins with narratives on the many challenges faced by rare disease patient and their caregivers. Subsequent chapters underscore the critical, multidimensional role of patient advocacy groups and the novel approaches to related clinical trials, investment decisions, and the optimization of rare disease registries. The book addresses various rare disease drug development processes by disciplines such as oncology, hematology, pediatrics, and gene therapy. Chapters then address the operational aspects of drug development, including approval processes, development accelerations, and market access strategies. The book concludes with reflections on the authors' case for real-world data and evidence generation in orphan medicinal drug development. Rare Disease Drug Development is an expertly written text optimized for biopharmaceutical R&D experts, commercial experts, third-party capital providers, patient advocacy groups, patients, and caregivers.
Historians have long engaged with Roy Porter’s call for histories that incorporate patients’ voices and experiences. But despite concerted methodological efforts, there has simply not been the degree and breadth of innovation that Porter envisaged. Patients’ voices still often remain obscured. This has resulted in part from assumptions about the limitations of archives, many of which are formed of institutional records written from the perspective of health professionals. Patient voices in Britain repositions patient experiences at the centre of healthcare history, using new types of sources and reading familiar sources in new ways. Focusing on military medicine, Poor Law medicine, disability, psychiatry and sexual health, this collection encourages historians to tackle the ethical challenges of using archival material and to think more carefully about how their work might speak to persistent health inequalities and challenges in health-service delivery.
Book Synopsis Patient voices in Britain, 1840–1948 by : Anne Hanley
Download or read book Patient voices in Britain, 1840–1948 written by Anne Hanley and published by Manchester University Press. This book was released on 2021-09-07 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: Historians have long engaged with Roy Porter’s call for histories that incorporate patients’ voices and experiences. But despite concerted methodological efforts, there has simply not been the degree and breadth of innovation that Porter envisaged. Patients’ voices still often remain obscured. This has resulted in part from assumptions about the limitations of archives, many of which are formed of institutional records written from the perspective of health professionals. Patient voices in Britain repositions patient experiences at the centre of healthcare history, using new types of sources and reading familiar sources in new ways. Focusing on military medicine, Poor Law medicine, disability, psychiatry and sexual health, this collection encourages historians to tackle the ethical challenges of using archival material and to think more carefully about how their work might speak to persistent health inequalities and challenges in health-service delivery.
What is the role of activists and civil society in defining and defending the collective good in healthcare, especially in cases where that good seems to be heavily shaped by market dynamics? Presenting conceptual and empirical studies from a variety of healthcare contexts and theoretical perspectives, this book addresses this vital question by drawing together multidisciplinary scholarship from Science and Technology Studies, Sociology, Organisation Studies, Marketing, Philosophy, and Public Health. Healthcare has undergone three major changes over the past decades: the advent of personalized medicine, the marketization of public care systems, and the digitalization of healthcare services. This book maps these changes and illustrates the extent to which they are interlinked to produce a seemingly unstoppable move toward individualization in healthcare. The book also highlights the tensions and challenges arising from these interlinkages, and traces how activists react to these tensions to argue for and defend the common good. It thus sketches a multifaceted picture of healthcare activism in the 21st century as civil society responds to these dynamics at the crossroads of markets and morals, economic and social justifications, individual and collective, and digital and non-digital worlds. Crucially, it also highlights potential solutions for heightening patient voices and broadening participation in healthcare markets in a post Covid-19 world.
Book Synopsis Healthcare Activism by : Susi Geiger
Download or read book Healthcare Activism written by Susi Geiger and published by Oxford University Press. This book was released on 2021-09-09 with total page 262 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is the role of activists and civil society in defining and defending the collective good in healthcare, especially in cases where that good seems to be heavily shaped by market dynamics? Presenting conceptual and empirical studies from a variety of healthcare contexts and theoretical perspectives, this book addresses this vital question by drawing together multidisciplinary scholarship from Science and Technology Studies, Sociology, Organisation Studies, Marketing, Philosophy, and Public Health. Healthcare has undergone three major changes over the past decades: the advent of personalized medicine, the marketization of public care systems, and the digitalization of healthcare services. This book maps these changes and illustrates the extent to which they are interlinked to produce a seemingly unstoppable move toward individualization in healthcare. The book also highlights the tensions and challenges arising from these interlinkages, and traces how activists react to these tensions to argue for and defend the common good. It thus sketches a multifaceted picture of healthcare activism in the 21st century as civil society responds to these dynamics at the crossroads of markets and morals, economic and social justifications, individual and collective, and digital and non-digital worlds. Crucially, it also highlights potential solutions for heightening patient voices and broadening participation in healthcare markets in a post Covid-19 world.
