Personalised Medicine, Individual Choice and the Common Good

Personalised Medicine, Individual Choice and the Common Good

Author: Britta van Beers

Publisher: Cambridge University Press

Published: 2018-11-22

Total Pages: 577

ISBN-13: 1108675719

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Hippocrates famously advised doctors 'it is far more important to know what person the disease has than what disease the person has'. Yet 2,500 years later, 'personalised medicine', based on individual genetic profiling and the achievements of genomic research, claims to be revolutionary. In this book, experts from a wide range of disciplines critically examine this claim. They expand the discussion of personalised medicine beyond its usual scope to include many other highly topical issues, including: human nuclear genome transfer ('three-parent IVF'), stem cell-derived gametes, private umbilical cord blood banking, international trade in human organs, biobanks such as the US Precision Medicine Initiative, direct-to-consumer genetic testing, health and fitness self-monitoring. Although these technologies often prioritise individual choice, the original ideal of genomic research saw the human genome as 'the common heritage of humanity'. The authors question whether personalised medicine actually threatens this conception of the common good.


Book Synopsis Personalised Medicine, Individual Choice and the Common Good by : Britta van Beers

Download or read book Personalised Medicine, Individual Choice and the Common Good written by Britta van Beers and published by Cambridge University Press. This book was released on 2018-11-22 with total page 577 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hippocrates famously advised doctors 'it is far more important to know what person the disease has than what disease the person has'. Yet 2,500 years later, 'personalised medicine', based on individual genetic profiling and the achievements of genomic research, claims to be revolutionary. In this book, experts from a wide range of disciplines critically examine this claim. They expand the discussion of personalised medicine beyond its usual scope to include many other highly topical issues, including: human nuclear genome transfer ('three-parent IVF'), stem cell-derived gametes, private umbilical cord blood banking, international trade in human organs, biobanks such as the US Precision Medicine Initiative, direct-to-consumer genetic testing, health and fitness self-monitoring. Although these technologies often prioritise individual choice, the original ideal of genomic research saw the human genome as 'the common heritage of humanity'. The authors question whether personalised medicine actually threatens this conception of the common good.

Personalised Medicine, Individual Choice and the Common Good

Personalised Medicine, Individual Choice and the Common Good

Author: Britta Chongkol van Beers

Publisher: Cambridge University Press

Published: 2018-11-22

Total Pages: 321

ISBN-13: 1108473911

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Asks whether personalised medicine is superior to 'one-size-fits-all' treatment. Does it elevate individual choice above the common good?


Book Synopsis Personalised Medicine, Individual Choice and the Common Good by : Britta Chongkol van Beers

Download or read book Personalised Medicine, Individual Choice and the Common Good written by Britta Chongkol van Beers and published by Cambridge University Press. This book was released on 2018-11-22 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: Asks whether personalised medicine is superior to 'one-size-fits-all' treatment. Does it elevate individual choice above the common good?

Me Medicine vs. We Medicine

Me Medicine vs. We Medicine

Author: Donna Dickenson

Publisher: Columbia University Press

Published: 2013-06-18

Total Pages: 293

ISBN-13: 0231534418

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Personalized healthcare—or what the award-winning author Donna Dickenson calls "Me Medicine"—is radically transforming our longstanding "one-size-fits-all" model. Technologies such as direct-to-consumer genetic testing, pharmacogenetically developed therapies in cancer care, private umbilical cord blood banking, and neurocognitive enhancement claim to cater to an individual's specific biological character, and, in some cases, these technologies have shown powerful potential. Yet in others they have produced negligible or even negative results. Whatever is behind the rise of Me Medicine, it isn't just science. So why is Me Medicine rapidly edging out We Medicine, and how has our commitment to our collective health suffered as a result? In her cogent, provocative analysis, Dickenson examines the economic and political factors fueling the Me Medicine phenomenon and explores how, over time, this paradigm shift in how we approach our health might damage our individual and collective well-being. Historically, the measures of "We Medicine," such as vaccination and investment in public-health infrastructure, have radically extended our life spans, and Dickenson argues we've lost sight of that truth in our enthusiasm for "Me Medicine." Dickenson explores how personalized medicine illustrates capitalism's protean capacity for creating new products and markets where none existed before—and how this, rather than scientific plausibility, goes a long way toward explaining private umbilical cord blood banks and retail genetics. Drawing on the latest findings from leading scientists, social scientists, and political analysts, she critically examines four possible hypotheses driving our Me Medicine moment: a growing sense of threat; a wave of patient narcissism; corporate interests driving new niche markets; and the dominance of personal choice as a cultural value. She concludes with insights from political theory that emphasize a conception of the commons and the steps we can take to restore its value to modern biotechnology.


Book Synopsis Me Medicine vs. We Medicine by : Donna Dickenson

Download or read book Me Medicine vs. We Medicine written by Donna Dickenson and published by Columbia University Press. This book was released on 2013-06-18 with total page 293 pages. Available in PDF, EPUB and Kindle. Book excerpt: Personalized healthcare—or what the award-winning author Donna Dickenson calls "Me Medicine"—is radically transforming our longstanding "one-size-fits-all" model. Technologies such as direct-to-consumer genetic testing, pharmacogenetically developed therapies in cancer care, private umbilical cord blood banking, and neurocognitive enhancement claim to cater to an individual's specific biological character, and, in some cases, these technologies have shown powerful potential. Yet in others they have produced negligible or even negative results. Whatever is behind the rise of Me Medicine, it isn't just science. So why is Me Medicine rapidly edging out We Medicine, and how has our commitment to our collective health suffered as a result? In her cogent, provocative analysis, Dickenson examines the economic and political factors fueling the Me Medicine phenomenon and explores how, over time, this paradigm shift in how we approach our health might damage our individual and collective well-being. Historically, the measures of "We Medicine," such as vaccination and investment in public-health infrastructure, have radically extended our life spans, and Dickenson argues we've lost sight of that truth in our enthusiasm for "Me Medicine." Dickenson explores how personalized medicine illustrates capitalism's protean capacity for creating new products and markets where none existed before—and how this, rather than scientific plausibility, goes a long way toward explaining private umbilical cord blood banks and retail genetics. Drawing on the latest findings from leading scientists, social scientists, and political analysts, she critically examines four possible hypotheses driving our Me Medicine moment: a growing sense of threat; a wave of patient narcissism; corporate interests driving new niche markets; and the dominance of personal choice as a cultural value. She concludes with insights from political theory that emphasize a conception of the commons and the steps we can take to restore its value to modern biotechnology.

Can precision medicine be personal; Can personalized medicine be precise?

Can precision medicine be personal; Can personalized medicine be precise?

Author: Y. Michael Barilan

Publisher: Oxford University Press

Published: 2022-02-10

Total Pages: 353

ISBN-13: 0192608681

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People have always sought medical care that is tailored to every individual patient. Alongside with the historical development of institutions of care, the vision of personal and 'holistic' care persisted. Patient-centred medicine, interpersonal communication and shared decision making have become central to medical practice and services. This evolving vision of 'personalized medicine' is in the forefront of medicine, creating debates among ethicists, philosophers and sociologists of medicine about the nature of disease and the definition of wellness, the impact on the daily life of patients, as well as its implications on low-income countries. Is increased 'precision' also an improvement on the personal aspects of care or erosion of privacy? Do 'precise' and 'personalized' approach marginalize public health, and can this care be personalized without attention to culture, economy and society? The book provides a multidisciplinary and interdisciplinary discussion of the ethos and ethics of precision/personal medicine, involving scientists who have shaped the field, in dialogue with ethicists, social scientists and philosophers of science. The contributing scholars come from all over the world and from different cultural backgrounds providing reflective perspectives of history of ideas, critical theory and technology assessment, together with the actual work done by pioneers in the field. It explores issues such as global justice, gender, public health, pharmaceutical industry, international law and religion, and explores themes discussed in relation to personalized medicine such as new-born screening and disorders of consciousness. This book will be of interest to academicians in bioethics, history of medicine, social sciences of medicine as well as general educated readers.


Book Synopsis Can precision medicine be personal; Can personalized medicine be precise? by : Y. Michael Barilan

Download or read book Can precision medicine be personal; Can personalized medicine be precise? written by Y. Michael Barilan and published by Oxford University Press. This book was released on 2022-02-10 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: People have always sought medical care that is tailored to every individual patient. Alongside with the historical development of institutions of care, the vision of personal and 'holistic' care persisted. Patient-centred medicine, interpersonal communication and shared decision making have become central to medical practice and services. This evolving vision of 'personalized medicine' is in the forefront of medicine, creating debates among ethicists, philosophers and sociologists of medicine about the nature of disease and the definition of wellness, the impact on the daily life of patients, as well as its implications on low-income countries. Is increased 'precision' also an improvement on the personal aspects of care or erosion of privacy? Do 'precise' and 'personalized' approach marginalize public health, and can this care be personalized without attention to culture, economy and society? The book provides a multidisciplinary and interdisciplinary discussion of the ethos and ethics of precision/personal medicine, involving scientists who have shaped the field, in dialogue with ethicists, social scientists and philosophers of science. The contributing scholars come from all over the world and from different cultural backgrounds providing reflective perspectives of history of ideas, critical theory and technology assessment, together with the actual work done by pioneers in the field. It explores issues such as global justice, gender, public health, pharmaceutical industry, international law and religion, and explores themes discussed in relation to personalized medicine such as new-born screening and disorders of consciousness. This book will be of interest to academicians in bioethics, history of medicine, social sciences of medicine as well as general educated readers.

Biolegality

Biolegality

Author: Sonja van Wichelen

Publisher: Springer Nature

Published:

Total Pages: 264

ISBN-13: 9819987490

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Book Synopsis Biolegality by : Sonja van Wichelen

Download or read book Biolegality written by Sonja van Wichelen and published by Springer Nature. This book was released on with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Solidarity in Biomedicine and Beyond

Solidarity in Biomedicine and Beyond

Author: Barbara Prainsack

Publisher: Cambridge University Press

Published: 2017-01-19

Total Pages: 359

ISBN-13: 1108107648

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In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.


Book Synopsis Solidarity in Biomedicine and Beyond by : Barbara Prainsack

Download or read book Solidarity in Biomedicine and Beyond written by Barbara Prainsack and published by Cambridge University Press. This book was released on 2017-01-19 with total page 359 pages. Available in PDF, EPUB and Kindle. Book excerpt: In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.

History for Tomorrow

History for Tomorrow

Author: Roman Krznaric

Publisher: Random House

Published: 2024-07-04

Total Pages: 232

ISBN-13: 075355965X

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'Brimming with ideas and insights, this is a welcome, important and clear-eyed view of how understanding the past can help us better prepare for the future' - Peter Frankopan, bestselling author of The Earth Transformed and The Silk Roads 'Enlightening and thrilling. History for Tomorrow tells us who we are and who we could be' - George Monbiot, bestselling author of Regenesis and How Did We Get Into This Mess? What can humankind’s rich history of radical revolts teach us about the power of disobedience to tackle the climate crisis? What inspiration could we take from eighteenth century Japan to create a regenerative economy today? How might understanding the origins of capitalism spark ideas for bringing AI under control? In History for Tomorrow, leading social philosopher Roman Krznaric unearths fascinating insights and inspiration from the last 1000 years of world history that could help us confront the most urgent challenges facing humanity in the twenty-first century. From bridging the inequality gap and reducing the risks of genetic engineering, to reviving our faith in democracy and avoiding ecological collapse, History for Tomorrow shows that history is not simply a means of understanding the past but a way of reimagining our relationship with the future. Krznaric reveals how, time and again, societies have risen up, often against the odds, to tackle challenges and overcome crises. History offers a vision of radical hope that could turn out to be our most vital tool for surviving and thriving in the turbulent decades ahead.


Book Synopsis History for Tomorrow by : Roman Krznaric

Download or read book History for Tomorrow written by Roman Krznaric and published by Random House. This book was released on 2024-07-04 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Brimming with ideas and insights, this is a welcome, important and clear-eyed view of how understanding the past can help us better prepare for the future' - Peter Frankopan, bestselling author of The Earth Transformed and The Silk Roads 'Enlightening and thrilling. History for Tomorrow tells us who we are and who we could be' - George Monbiot, bestselling author of Regenesis and How Did We Get Into This Mess? What can humankind’s rich history of radical revolts teach us about the power of disobedience to tackle the climate crisis? What inspiration could we take from eighteenth century Japan to create a regenerative economy today? How might understanding the origins of capitalism spark ideas for bringing AI under control? In History for Tomorrow, leading social philosopher Roman Krznaric unearths fascinating insights and inspiration from the last 1000 years of world history that could help us confront the most urgent challenges facing humanity in the twenty-first century. From bridging the inequality gap and reducing the risks of genetic engineering, to reviving our faith in democracy and avoiding ecological collapse, History for Tomorrow shows that history is not simply a means of understanding the past but a way of reimagining our relationship with the future. Krznaric reveals how, time and again, societies have risen up, often against the odds, to tackle challenges and overcome crises. History offers a vision of radical hope that could turn out to be our most vital tool for surviving and thriving in the turbulent decades ahead.

The Logic of Care

The Logic of Care

Author: Annemarie Mol

Publisher: Routledge

Published: 2008-05-24

Total Pages: 142

ISBN-13: 1134053177

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What is ‘good care’ and does more choice lead to better care? This innovative and compelling work investigates good care and argues that the often touted ideal of ‘patient choice’ will not improve healthcare in the ways hoped for by its advocates.


Book Synopsis The Logic of Care by : Annemarie Mol

Download or read book The Logic of Care written by Annemarie Mol and published by Routledge. This book was released on 2008-05-24 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is ‘good care’ and does more choice lead to better care? This innovative and compelling work investigates good care and argues that the often touted ideal of ‘patient choice’ will not improve healthcare in the ways hoped for by its advocates.

Data Paradoxes

Data Paradoxes

Author: Klaus Hoeyer

Publisher: MIT Press

Published: 2023-04-18

Total Pages: 327

ISBN-13: 0262545411

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Why healthcare cannot—and should not—become data-driven, despite the many promises of intensified data sourcing. In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar Klaus Hoeyer offers an in-depth look at the paradoxes surrounding healthcare data. Focusing on Denmark, a world leader in healthcare data infrastructures, Hoeyer shares the perspectives of different stakeholders, from epidemiologists to hospital managers, from patients to physicians, analyzing the social dynamics set in motion by data intensification and calling special attention to that which cannot be easily coded in a database. HHe illustrates how data can be at once helpful, overwhelming, and sometimes disastrous through concrete examples. The COVID-19 pandemic serves as a special closing case study that shows how these data paradoxes carry weighty political implications. By revealing the diverse and sometimes contradictory practices spawned by intensified data sourcing, Data Paradoxes raises vital questions about how we might better use healthcare data.


Book Synopsis Data Paradoxes by : Klaus Hoeyer

Download or read book Data Paradoxes written by Klaus Hoeyer and published by MIT Press. This book was released on 2023-04-18 with total page 327 pages. Available in PDF, EPUB and Kindle. Book excerpt: Why healthcare cannot—and should not—become data-driven, despite the many promises of intensified data sourcing. In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar Klaus Hoeyer offers an in-depth look at the paradoxes surrounding healthcare data. Focusing on Denmark, a world leader in healthcare data infrastructures, Hoeyer shares the perspectives of different stakeholders, from epidemiologists to hospital managers, from patients to physicians, analyzing the social dynamics set in motion by data intensification and calling special attention to that which cannot be easily coded in a database. HHe illustrates how data can be at once helpful, overwhelming, and sometimes disastrous through concrete examples. The COVID-19 pandemic serves as a special closing case study that shows how these data paradoxes carry weighty political implications. By revealing the diverse and sometimes contradictory practices spawned by intensified data sourcing, Data Paradoxes raises vital questions about how we might better use healthcare data.

Consent for Medical Treatment of Trans and Gender Diverse Youth

Consent for Medical Treatment of Trans and Gender Diverse Youth

Author: Steph Jowett

Publisher: Cambridge University Press

Published: 2022-10-06

Total Pages: 229

ISBN-13: 131651420X

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Examines the law governing consent to medical treatment for trans youth in Australia, England and Wales.


Book Synopsis Consent for Medical Treatment of Trans and Gender Diverse Youth by : Steph Jowett

Download or read book Consent for Medical Treatment of Trans and Gender Diverse Youth written by Steph Jowett and published by Cambridge University Press. This book was released on 2022-10-06 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines the law governing consent to medical treatment for trans youth in Australia, England and Wales.