The Patient Group Handbook (Agility-PSR Edition)

The Patient Group Handbook (Agility-PSR Edition)

Author: Anthony Hall

Publisher:

Published: 2016-04-26

Total Pages: 432

ISBN-13: 9781532938276

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This new book edited by rare disease experts Anthony Hall and Nicolas Sireau provides a collection of chapters by world leaders in the field of orphan diseases and drugs in order to help patient groups grow fast and sustainably. As a practical, hands-on guide for research and drug development, it provides tools and advice on topics such as: - How to set up and manage a patient group: US and UK perspectives. - How to build an international research consortium. - How to promote basic research. - How to engage with academia for drug discovery. - How to engage with industry. - How to set up a centre of excellence. - New funding strategies for clinical research. - Crowdfunding for rare diseases. - Practical thinking to win bids. - Orphan drug legislation and adaptive licensing. - Early interaction with regulators and parallel scientific advice with health technology assessors. - How to navigate the regulatory process. - Empowering children to become involved in the research agenda. - Natural history studies. - Clinical efficacy measures and surrogate endpoints. - Statistical considerations. - Setting up and running a clinical trial. - Patient registries. - How to interact with government and lobby for change to the clinical trials system. - Patent protection and ownership of patents. - Engaging patients and carers online for clinical trials. If you are involved in patient groups or rare diseases in any way, then this book will provide valuable reading. All royalties from sales of this book are being donated to the charity Findacure, which provides support to rare disease patient groups.


Book Synopsis The Patient Group Handbook (Agility-PSR Edition) by : Anthony Hall

Download or read book The Patient Group Handbook (Agility-PSR Edition) written by Anthony Hall and published by . This book was released on 2016-04-26 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: This new book edited by rare disease experts Anthony Hall and Nicolas Sireau provides a collection of chapters by world leaders in the field of orphan diseases and drugs in order to help patient groups grow fast and sustainably. As a practical, hands-on guide for research and drug development, it provides tools and advice on topics such as: - How to set up and manage a patient group: US and UK perspectives. - How to build an international research consortium. - How to promote basic research. - How to engage with academia for drug discovery. - How to engage with industry. - How to set up a centre of excellence. - New funding strategies for clinical research. - Crowdfunding for rare diseases. - Practical thinking to win bids. - Orphan drug legislation and adaptive licensing. - Early interaction with regulators and parallel scientific advice with health technology assessors. - How to navigate the regulatory process. - Empowering children to become involved in the research agenda. - Natural history studies. - Clinical efficacy measures and surrogate endpoints. - Statistical considerations. - Setting up and running a clinical trial. - Patient registries. - How to interact with government and lobby for change to the clinical trials system. - Patent protection and ownership of patents. - Engaging patients and carers online for clinical trials. If you are involved in patient groups or rare diseases in any way, then this book will provide valuable reading. All royalties from sales of this book are being donated to the charity Findacure, which provides support to rare disease patient groups.


The Patient Group Handbook (Agility Edition)

The Patient Group Handbook (Agility Edition)

Author: Anthony Hall

Publisher:

Published: 2016-04-26

Total Pages: 432

ISBN-13: 9781532938108

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This new book edited by rare disease experts Anthony Hall and Nicolas Sireau provides a collection of chapters by world leaders in the field of orphan diseases and drugs in order to help patient groups grow fast and sustainably. As a practical, hands-on guide for research and drug development, it provides tools and advice on topics such as: - How to set up and manage a patient group: US and UK perspectives. - How to build an international research consortium. - How to promote basic research. - How to engage with academia for drug discovery. - How to engage with industry. - How to set up a centre of excellence. - New funding strategies for clinical research. - Crowdfunding for rare diseases. - Practical thinking to win bids. - Orphan drug legislation and adaptive licensing. - Early interaction with regulators and parallel scientific advice with health technology assessors. - How to navigate the regulatory process. - Empowering children to become involved in the research agenda. - Natural history studies. - Clinical efficacy measures and surrogate endpoints. - Statistical considerations. - Setting up and running a clinical trial. - Patient registries. - How to interact with government and lobby for change to the clinical trials system. - Patent protection and ownership of patents. - Engaging patients and carers online for clinical trials. If you are involved in patient groups or rare diseases in any way, then this book will provide valuable reading. All royalties from sales of this book are being donated to the charity Findacure, which provides support to rare disease patient groups.


Book Synopsis The Patient Group Handbook (Agility Edition) by : Anthony Hall

Download or read book The Patient Group Handbook (Agility Edition) written by Anthony Hall and published by . This book was released on 2016-04-26 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: This new book edited by rare disease experts Anthony Hall and Nicolas Sireau provides a collection of chapters by world leaders in the field of orphan diseases and drugs in order to help patient groups grow fast and sustainably. As a practical, hands-on guide for research and drug development, it provides tools and advice on topics such as: - How to set up and manage a patient group: US and UK perspectives. - How to build an international research consortium. - How to promote basic research. - How to engage with academia for drug discovery. - How to engage with industry. - How to set up a centre of excellence. - New funding strategies for clinical research. - Crowdfunding for rare diseases. - Practical thinking to win bids. - Orphan drug legislation and adaptive licensing. - Early interaction with regulators and parallel scientific advice with health technology assessors. - How to navigate the regulatory process. - Empowering children to become involved in the research agenda. - Natural history studies. - Clinical efficacy measures and surrogate endpoints. - Statistical considerations. - Setting up and running a clinical trial. - Patient registries. - How to interact with government and lobby for change to the clinical trials system. - Patent protection and ownership of patents. - Engaging patients and carers online for clinical trials. If you are involved in patient groups or rare diseases in any way, then this book will provide valuable reading. All royalties from sales of this book are being donated to the charity Findacure, which provides support to rare disease patient groups.


The Openspace Agility Handbook

The Openspace Agility Handbook

Author: Daniel Mezick

Publisher:

Published: 2015-07-04

Total Pages:

ISBN-13: 9780984875337

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With this handbook, you will learn how implement the OpenSpaceAgility method. You'll learn about how invitation, iteration, Open Space, game mechanics, passage rites, executive storytelling (and more) are used to achieve a rapid and lasting Agile adoption. Inside, you'll find specific, actionable step-by-step guidance on implementing the method. You will discover: * Why people power the Agile practices, not the other way around * Why engagement is an essential ingredient in any successful Agile adoption* How invitation increases engagement, passion and responsibility* How to immediately put the OpenSpaceAgility method to work ... in your organizationLearn more at: www.OpenSpaceAgility.com


Book Synopsis The Openspace Agility Handbook by : Daniel Mezick

Download or read book The Openspace Agility Handbook written by Daniel Mezick and published by . This book was released on 2015-07-04 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: With this handbook, you will learn how implement the OpenSpaceAgility method. You'll learn about how invitation, iteration, Open Space, game mechanics, passage rites, executive storytelling (and more) are used to achieve a rapid and lasting Agile adoption. Inside, you'll find specific, actionable step-by-step guidance on implementing the method. You will discover: * Why people power the Agile practices, not the other way around * Why engagement is an essential ingredient in any successful Agile adoption* How invitation increases engagement, passion and responsibility* How to immediately put the OpenSpaceAgility method to work ... in your organizationLearn more at: www.OpenSpaceAgility.com


The DevOps Handbook

The DevOps Handbook

Author: Gene Kim

Publisher: IT Revolution

Published: 2016-10-06

Total Pages: 515

ISBN-13: 194278807X

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Increase profitability, elevate work culture, and exceed productivity goals through DevOps practices. More than ever, the effective management of technology is critical for business competitiveness. For decades, technology leaders have struggled to balance agility, reliability, and security. The consequences of failure have never been greater―whether it's the healthcare.gov debacle, cardholder data breaches, or missing the boat with Big Data in the cloud. And yet, high performers using DevOps principles, such as Google, Amazon, Facebook, Etsy, and Netflix, are routinely and reliably deploying code into production hundreds, or even thousands, of times per day. Following in the footsteps of The Phoenix Project, The DevOps Handbook shows leaders how to replicate these incredible outcomes, by showing how to integrate Product Management, Development, QA, IT Operations, and Information Security to elevate your company and win in the marketplace.


Book Synopsis The DevOps Handbook by : Gene Kim

Download or read book The DevOps Handbook written by Gene Kim and published by IT Revolution. This book was released on 2016-10-06 with total page 515 pages. Available in PDF, EPUB and Kindle. Book excerpt: Increase profitability, elevate work culture, and exceed productivity goals through DevOps practices. More than ever, the effective management of technology is critical for business competitiveness. For decades, technology leaders have struggled to balance agility, reliability, and security. The consequences of failure have never been greater―whether it's the healthcare.gov debacle, cardholder data breaches, or missing the boat with Big Data in the cloud. And yet, high performers using DevOps principles, such as Google, Amazon, Facebook, Etsy, and Netflix, are routinely and reliably deploying code into production hundreds, or even thousands, of times per day. Following in the footsteps of The Phoenix Project, The DevOps Handbook shows leaders how to replicate these incredible outcomes, by showing how to integrate Product Management, Development, QA, IT Operations, and Information Security to elevate your company and win in the marketplace.


Balancing Agility and Discipline

Balancing Agility and Discipline

Author: Barry W. Boehm

Publisher: Addison-Wesley Professional

Published: 2004

Total Pages: 302

ISBN-13: 9780321186126

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"Balancing Agility and Discipline" begins by defining the terms, sweeping aside the rhetoric and drilling down to core concepts. The authors describe a day in the life of developers who live on one side or the other. Their analysis is both objective and grounded, leading to clear and practical guidance for all software professionals.


Book Synopsis Balancing Agility and Discipline by : Barry W. Boehm

Download or read book Balancing Agility and Discipline written by Barry W. Boehm and published by Addison-Wesley Professional. This book was released on 2004 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Balancing Agility and Discipline" begins by defining the terms, sweeping aside the rhetoric and drilling down to core concepts. The authors describe a day in the life of developers who live on one side or the other. Their analysis is both objective and grounded, leading to clear and practical guidance for all software professionals.


The Agile Team Handbook, 2nd Edition

The Agile Team Handbook, 2nd Edition

Author: Jan Beaver

Publisher: Createspace Independent Publishing Platform

Published: 2017-07-24

Total Pages: 222

ISBN-13: 9781973714330

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Completely revised and expanded, The Agile Team Handbook, Second Edition, will help guide you, your Team, and your organization on your Agile journey using Scrum. Scrum is intentionally disruptive. It is socially disruptive and organizationally disruptive with a purpose - to help your team and your organization build the best possible products as effectively as possible. Working within the disruptive framework that is Scrum is both challenging and highly rewarding. This handbook provides a solid foundation for you and your team to overcome the challenges and reap the rewards.


Book Synopsis The Agile Team Handbook, 2nd Edition by : Jan Beaver

Download or read book The Agile Team Handbook, 2nd Edition written by Jan Beaver and published by Createspace Independent Publishing Platform. This book was released on 2017-07-24 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: Completely revised and expanded, The Agile Team Handbook, Second Edition, will help guide you, your Team, and your organization on your Agile journey using Scrum. Scrum is intentionally disruptive. It is socially disruptive and organizationally disruptive with a purpose - to help your team and your organization build the best possible products as effectively as possible. Working within the disruptive framework that is Scrum is both challenging and highly rewarding. This handbook provides a solid foundation for you and your team to overcome the challenges and reap the rewards.


Developing Agility and Quickness

Developing Agility and Quickness

Author: NSCA -National Strength & Conditioning Association

Publisher: Human Kinetics

Published: 2011-10-10

Total Pages: 322

ISBN-13: 1492582298

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The ball handler who fakes and then drives past a defender for an easy score. A pass rusher who leaves a would-be blocker in his wake on the way to sacking the quarterback. A setter who manages to maneuver both body and ball in the blink of an eye to make the perfect pass for the kill and match-winning point. These are all reasons agility and quickness are such prized physical attributes in modern sport. Efforts to become markedly quicker or more agile, however, aren’t always successful. Genetic limitations, technical deficiencies, and inferior training activities are among the major obstacles. Developing Agility and Quickness helps athletes blow past those barriers thanks to the top sport conditioning authority in the world, the National Strength and Conditioning Association. NSCA hand-picked its top experts to present the best training advice, drills, and programs for optimizing athletes’ linear and lateral movements. Make Developing Agility and Quickness a key part of your conditioning program, and get a step ahead of the competition.


Book Synopsis Developing Agility and Quickness by : NSCA -National Strength & Conditioning Association

Download or read book Developing Agility and Quickness written by NSCA -National Strength & Conditioning Association and published by Human Kinetics. This book was released on 2011-10-10 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: The ball handler who fakes and then drives past a defender for an easy score. A pass rusher who leaves a would-be blocker in his wake on the way to sacking the quarterback. A setter who manages to maneuver both body and ball in the blink of an eye to make the perfect pass for the kill and match-winning point. These are all reasons agility and quickness are such prized physical attributes in modern sport. Efforts to become markedly quicker or more agile, however, aren’t always successful. Genetic limitations, technical deficiencies, and inferior training activities are among the major obstacles. Developing Agility and Quickness helps athletes blow past those barriers thanks to the top sport conditioning authority in the world, the National Strength and Conditioning Association. NSCA hand-picked its top experts to present the best training advice, drills, and programs for optimizing athletes’ linear and lateral movements. Make Developing Agility and Quickness a key part of your conditioning program, and get a step ahead of the competition.


The TOGAF® Standard, 10th Edition - Enterprise Agility and Digital Transformation

The TOGAF® Standard, 10th Edition - Enterprise Agility and Digital Transformation

Author: The Open Group

Publisher: Van Haren

Published: 2022-04-24

Total Pages: 144

ISBN-13: 9401808783

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This document is the Enterprise Agility and Digital Transformation TOGAF Series Guide Set. It contains two TOGAF Series Guides that have been developed and approved by The Open Group, and is part of the TOGAF Standard, 10th Edition. TOGAF® Series Guide: Enabling Enterprise Agility This document is designed to help Enterprise Architects requiring information on how to adapt and use the TOGAF framework to support an Agile enterprise. It covers the following topics: • An introduction to the topic, including what is meant by agility, the role of Enterprise Architecture, and how it relates to agility • The terms and definitions used in the document • The TOGAF Architecture Development Method (ADM) and how that relates to agility • How architecture activities can be structured to support agility • How to execute Enterprise Architecture in an Agile environment TOGAF® Series Guide: Using the TOGAF® Standard in the Digital Enterprise This document is written those undertaking the roles of both Enterprise Architect and Digital Practitioner. For Digital Practitioners, it communicates what architecture practices would help to grow their digital enterprise, and how to interact with the Enterprise Architecture community to get them. For those undertaking an Enterprise Architect role, it provides guidance on supporting the digital enterprise. It covers the following topics: • A high-level introduction to how established Enterprise Architecture practices bring value to digital enterprises at all scales • How Enterprise Architecture and the TOGAF Standard bring valuable tools to digital enterprises of all sizes • Alignment of terminology between the TOGAF Standard and the Digital Practitioner Body of Knowledge™ • Applying Enterprise Architecture and the TOGAF Standard to the contexts described in the DPBoK™ Standard


Book Synopsis The TOGAF® Standard, 10th Edition - Enterprise Agility and Digital Transformation by : The Open Group

Download or read book The TOGAF® Standard, 10th Edition - Enterprise Agility and Digital Transformation written by The Open Group and published by Van Haren. This book was released on 2022-04-24 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: This document is the Enterprise Agility and Digital Transformation TOGAF Series Guide Set. It contains two TOGAF Series Guides that have been developed and approved by The Open Group, and is part of the TOGAF Standard, 10th Edition. TOGAF® Series Guide: Enabling Enterprise Agility This document is designed to help Enterprise Architects requiring information on how to adapt and use the TOGAF framework to support an Agile enterprise. It covers the following topics: • An introduction to the topic, including what is meant by agility, the role of Enterprise Architecture, and how it relates to agility • The terms and definitions used in the document • The TOGAF Architecture Development Method (ADM) and how that relates to agility • How architecture activities can be structured to support agility • How to execute Enterprise Architecture in an Agile environment TOGAF® Series Guide: Using the TOGAF® Standard in the Digital Enterprise This document is written those undertaking the roles of both Enterprise Architect and Digital Practitioner. For Digital Practitioners, it communicates what architecture practices would help to grow their digital enterprise, and how to interact with the Enterprise Architecture community to get them. For those undertaking an Enterprise Architect role, it provides guidance on supporting the digital enterprise. It covers the following topics: • A high-level introduction to how established Enterprise Architecture practices bring value to digital enterprises at all scales • How Enterprise Architecture and the TOGAF Standard bring valuable tools to digital enterprises of all sizes • Alignment of terminology between the TOGAF Standard and the Digital Practitioner Body of Knowledge™ • Applying Enterprise Architecture and the TOGAF Standard to the contexts described in the DPBoK™ Standard


Agility

Agility

Author: Mark Mueller-Eberstein

Publisher: John Wiley & Sons

Published: 2010-06-29

Total Pages: 288

ISBN-13: 0470912529

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Insider secrets to competing-and winning-in the tech-savvy marketplace The new generation of technology savvy workers is changing the way we look at productivity. Agility uniquely describes how technology agility impacts your business's performance and can become a critical success factor. A must-read for leaders defining business strategy and technology implementation, the methodology it describes will show how to measure and drive technology adoption and the derived impact on business results. Includes international cases of various industries, from industry leaders Incorporates the ideas of flexibility, balance, adaptability, and coordination under one umbrella Uniquely describes how technology agility impacts business performance What differentiates Audi, BMW and Mercedes or GM? Understanding it can make or break the future of an organization. Agility makes it clear: the digital divide will be seen in those who take full advantage of the technology versus those merely have it.


Book Synopsis Agility by : Mark Mueller-Eberstein

Download or read book Agility written by Mark Mueller-Eberstein and published by John Wiley & Sons. This book was released on 2010-06-29 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Insider secrets to competing-and winning-in the tech-savvy marketplace The new generation of technology savvy workers is changing the way we look at productivity. Agility uniquely describes how technology agility impacts your business's performance and can become a critical success factor. A must-read for leaders defining business strategy and technology implementation, the methodology it describes will show how to measure and drive technology adoption and the derived impact on business results. Includes international cases of various industries, from industry leaders Incorporates the ideas of flexibility, balance, adaptability, and coordination under one umbrella Uniquely describes how technology agility impacts business performance What differentiates Audi, BMW and Mercedes or GM? Understanding it can make or break the future of an organization. Agility makes it clear: the digital divide will be seen in those who take full advantage of the technology versus those merely have it.


Excelling at Dog Agility: Obstacle training

Excelling at Dog Agility: Obstacle training

Author: Jane Simmons-Moake

Publisher: Flashpaws Productions

Published: 2005

Total Pages: 0

ISBN-13: 9780967492902

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This book provides detailed, step-by-step instructions for training your dog to master each agility obstacle with safety, fun, and competitive excellence in mind. It Includes important principles for building a happy and successful working relationship with your dog, as well as a solid foundation for all of your agility training. The focus is placed upon setting high standards from the start so that no retraining will be necessary later down the road.


Book Synopsis Excelling at Dog Agility: Obstacle training by : Jane Simmons-Moake

Download or read book Excelling at Dog Agility: Obstacle training written by Jane Simmons-Moake and published by Flashpaws Productions. This book was released on 2005 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides detailed, step-by-step instructions for training your dog to master each agility obstacle with safety, fun, and competitive excellence in mind. It Includes important principles for building a happy and successful working relationship with your dog, as well as a solid foundation for all of your agility training. The focus is placed upon setting high standards from the start so that no retraining will be necessary later down the road.