The Power of Rare

The Power of Rare

Author: Victoria Jackson

Publisher: Simon and Schuster

Published: 2017-09-26

Total Pages: 272

ISBN-13: 0692928995

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"The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs.


Book Synopsis The Power of Rare by : Victoria Jackson

Download or read book The Power of Rare written by Victoria Jackson and published by Simon and Schuster. This book was released on 2017-09-26 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs.


The Power of Rare

The Power of Rare

Author: Victoria Jackson

Publisher: Simon and Schuster

Published: 2017-09-26

Total Pages: 288

ISBN-13: 0692937889

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"The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs.


Book Synopsis The Power of Rare by : Victoria Jackson

Download or read book The Power of Rare written by Victoria Jackson and published by Simon and Schuster. This book was released on 2017-09-26 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs.


Raising a Rare Girl

Raising a Rare Girl

Author: Heather Lanier

Publisher: Penguin

Published: 2021-07-06

Total Pages: 321

ISBN-13: 0525559655

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“A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors' Choice In Raising a Rare Girl, Lanier explores how to defy the tyranny of normal and embrace parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, when Heather Lanier was expecting her first child she did everything by the book in the hope that she could create a SuperBaby, a supremely healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier’s preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. The diagnosis obliterated Lanier’s perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.


Book Synopsis Raising a Rare Girl by : Heather Lanier

Download or read book Raising a Rare Girl written by Heather Lanier and published by Penguin. This book was released on 2021-07-06 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors' Choice In Raising a Rare Girl, Lanier explores how to defy the tyranny of normal and embrace parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, when Heather Lanier was expecting her first child she did everything by the book in the hope that she could create a SuperBaby, a supremely healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier’s preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. The diagnosis obliterated Lanier’s perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.


Rare Earth Frontiers

Rare Earth Frontiers

Author: Julie Michelle Klinger

Publisher: Cornell University Press

Published: 2018-01-15

Total Pages: 340

ISBN-13: 1501714619

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Owing to their unique magnetic, phosphorescent, and catalytic properties, rare earths are the elements that make possible teverything from the miniaturization of electronics, to the enabling of green energy and medical technologies, to supporting essential telecommunications and defense systems. An iPhone uses eight rare earths for everything from its colored screen, to its speakers, to the miniaturization of the phone?s circuitry. On the periodic table rare earth elements comprise a set of seventeen chemical elements (the fifteen lanthanides plus scandium and yttrium). There would be no Pokémon Go without rare earths. Rare Earth Frontiers is a work of human geography. Klinger looks historically and geographically at the ways rare earth elements in three discrete but representative and contested sites are given meaning.


Book Synopsis Rare Earth Frontiers by : Julie Michelle Klinger

Download or read book Rare Earth Frontiers written by Julie Michelle Klinger and published by Cornell University Press. This book was released on 2018-01-15 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt: Owing to their unique magnetic, phosphorescent, and catalytic properties, rare earths are the elements that make possible teverything from the miniaturization of electronics, to the enabling of green energy and medical technologies, to supporting essential telecommunications and defense systems. An iPhone uses eight rare earths for everything from its colored screen, to its speakers, to the miniaturization of the phone?s circuitry. On the periodic table rare earth elements comprise a set of seventeen chemical elements (the fifteen lanthanides plus scandium and yttrium). There would be no Pokémon Go without rare earths. Rare Earth Frontiers is a work of human geography. Klinger looks historically and geographically at the ways rare earth elements in three discrete but representative and contested sites are given meaning.


The Rare and the Beautiful

The Rare and the Beautiful

Author: Cressida Connolly

Publisher: Fourth Estate

Published: 2006

Total Pages: 297

ISBN-13: 9780007241033

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A biography of a family, and a portrait of an era.


Book Synopsis The Rare and the Beautiful by : Cressida Connolly

Download or read book The Rare and the Beautiful written by Cressida Connolly and published by Fourth Estate. This book was released on 2006 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: A biography of a family, and a portrait of an era.


Hubert's Freaks

Hubert's Freaks

Author: Gregory Gibson

Publisher: Houghton Mifflin Harcourt

Published: 2009

Total Pages: 308

ISBN-13: 9780156033084

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From the moment Bob Langmuir, a down-and-out rare book dealer, spies some intriguing photographs in the archive of a midcentury Times Square freak show, he knows he's on to something. It turns out he's made the find of a lifetime--never-before-seen prints by the legendary Diane Arbus. Furthermore, he begins to suspect that what he's found may add a pivotal chapter to what is now known about Arbus as well as about the "old weird America," in Greil Marcus's phrase, that Hubert's inhabited. Bob's ensuing adventure--a roller-coaster ride filled with bizarre characters and coincidences--takes him from the fringes of the rare book business to Sotheby's, and from the exhibits of a run-down Times Square freak show to the curator's office of the Metropolitan Museum of Art. Will the photos be authenticated? How will Arbus's notoriously protective daughter react? Most importantly, can Bob, who always manages to screw up his most promising deals, finally make just one big score?


Book Synopsis Hubert's Freaks by : Gregory Gibson

Download or read book Hubert's Freaks written by Gregory Gibson and published by Houghton Mifflin Harcourt. This book was released on 2009 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the moment Bob Langmuir, a down-and-out rare book dealer, spies some intriguing photographs in the archive of a midcentury Times Square freak show, he knows he's on to something. It turns out he's made the find of a lifetime--never-before-seen prints by the legendary Diane Arbus. Furthermore, he begins to suspect that what he's found may add a pivotal chapter to what is now known about Arbus as well as about the "old weird America," in Greil Marcus's phrase, that Hubert's inhabited. Bob's ensuing adventure--a roller-coaster ride filled with bizarre characters and coincidences--takes him from the fringes of the rare book business to Sotheby's, and from the exhibits of a run-down Times Square freak show to the curator's office of the Metropolitan Museum of Art. Will the photos be authenticated? How will Arbus's notoriously protective daughter react? Most importantly, can Bob, who always manages to screw up his most promising deals, finally make just one big score?


The Power of Soft

The Power of Soft

Author: Hilary Gallo

Publisher: Unbound Publishing

Published: 2016-01-28

Total Pages: 296

ISBN-13: 1783521414

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In The Power of Soft, Hilary Gallo Reveals a more effective way to get what you want—both in and out of the board room. Hilary spent years negotiating multi-million pound deals as a lawyer and began to notice that tough, bullying behaviour rarely got him or his clients the outcomes they were looking for. Over the years he began to develop a new way of approaching negotiations—the power of soft—and soon found his work and home life getting richer. In life and in business we often mask our inner vulnerability by adopting a hard, unwavering and ultimately ineffective approach. Instead, Gallo proves that our true power stems from drawing strength from our mental core and balancing that inner strength with a softer, more approachable front. He teaches us to see reality more clearly by looking past our judgments and preconceptions and to focus our energy on what we actually need to achieve. What started as a negotiation tactic soon became a philosophy for life. Whether closing a business deal or trying to get your kids to bed, The Power of Soft is an elegant, holistic and most of all effective method to get what you need and still be kind.


Book Synopsis The Power of Soft by : Hilary Gallo

Download or read book The Power of Soft written by Hilary Gallo and published by Unbound Publishing. This book was released on 2016-01-28 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: In The Power of Soft, Hilary Gallo Reveals a more effective way to get what you want—both in and out of the board room. Hilary spent years negotiating multi-million pound deals as a lawyer and began to notice that tough, bullying behaviour rarely got him or his clients the outcomes they were looking for. Over the years he began to develop a new way of approaching negotiations—the power of soft—and soon found his work and home life getting richer. In life and in business we often mask our inner vulnerability by adopting a hard, unwavering and ultimately ineffective approach. Instead, Gallo proves that our true power stems from drawing strength from our mental core and balancing that inner strength with a softer, more approachable front. He teaches us to see reality more clearly by looking past our judgments and preconceptions and to focus our energy on what we actually need to achieve. What started as a negotiation tactic soon became a philosophy for life. Whether closing a business deal or trying to get your kids to bed, The Power of Soft is an elegant, holistic and most of all effective method to get what you need and still be kind.


The Playboy Book

The Playboy Book

Author: Gretchen Edgren

Publisher: Taschen America Llc

Published: 1998

Total Pages: 368

ISBN-13: 9783822876466

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Book Synopsis The Playboy Book by : Gretchen Edgren

Download or read book The Playboy Book written by Gretchen Edgren and published by Taschen America Llc. This book was released on 1998 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt:


The Rare Find

The Rare Find

Author: George Anders

Publisher: Penguin

Published: 2011-10-18

Total Pages: 330

ISBN-13: 1101535806

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One of the nation's biggest music labels briefly signed Taylor Swift to a contract but let her go because she didn't seem worth more than $15,000 a year. At least four book publishers passed on the first Harry Potter novel rather than pay J. K. Rowling a $5,000 advance. And the same pattern happens in nearly every business. Anyone who recruits talent faces the same basic challenge, whether we work for a big company, a new start-up, a Hollywood studio, a hospital, or the Green Berets. We all wonder how to tell the really outstanding prospects from the ones who look great on paper but then fail on the job. Or, equally important, how to spot the ones who don't look so good on paper but might still deliver extraordinary performance. Over the past few decades, technology has made recruiting in all fields vastly more sophisticated. Gut instincts have yielded to benchmarks. If we want elaborate dossiers on candidates, we can gather facts (and video) by the gigabyte. And yet the results are just as spotty as they were in the age of the rotary phone. George Anders sought out the world's savviest talent judges to see what they do differently from the rest of us. He reveals how the U.S. Army finds soldiers with the character to be in Special Forces without asking them to fire a single bullet. He takes us to an elite basketball tournament in South Carolina, where the best scouts watch the game in a radically different way from the casual fan. He talks to researchers who are reinventing the process of hiring Fortune 500 CEOs. Drawing on the best advice of these and other talent masters, Anders reveals powerful ideas you can apply to your own hiring. For instance: Don't ignore "the jagged résumé"-people whose background appears to teeter on the edge between success and failure. Such people can do spectacular work in the right settings, where their strengths dramatically outweigh their flaws. Look extra hard for "talent that whispers"- the obscure, out-of-the- way candidates who most scouting systems overlook. Be careful with "talent that shouts"-the spectacular but brash candidates who might have trouble with loyalty, motivation, and team spirit. Each field that Anders explores has its own lingo, customs, and history. But the specific stories fit together into a bigger mosaic. In any field, there's an art to clearing away the clutter and focusing on what matters most. It's not necessarily hard, but it requires the courage to take a different approach in pursuit of the rare find.


Book Synopsis The Rare Find by : George Anders

Download or read book The Rare Find written by George Anders and published by Penguin. This book was released on 2011-10-18 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: One of the nation's biggest music labels briefly signed Taylor Swift to a contract but let her go because she didn't seem worth more than $15,000 a year. At least four book publishers passed on the first Harry Potter novel rather than pay J. K. Rowling a $5,000 advance. And the same pattern happens in nearly every business. Anyone who recruits talent faces the same basic challenge, whether we work for a big company, a new start-up, a Hollywood studio, a hospital, or the Green Berets. We all wonder how to tell the really outstanding prospects from the ones who look great on paper but then fail on the job. Or, equally important, how to spot the ones who don't look so good on paper but might still deliver extraordinary performance. Over the past few decades, technology has made recruiting in all fields vastly more sophisticated. Gut instincts have yielded to benchmarks. If we want elaborate dossiers on candidates, we can gather facts (and video) by the gigabyte. And yet the results are just as spotty as they were in the age of the rotary phone. George Anders sought out the world's savviest talent judges to see what they do differently from the rest of us. He reveals how the U.S. Army finds soldiers with the character to be in Special Forces without asking them to fire a single bullet. He takes us to an elite basketball tournament in South Carolina, where the best scouts watch the game in a radically different way from the casual fan. He talks to researchers who are reinventing the process of hiring Fortune 500 CEOs. Drawing on the best advice of these and other talent masters, Anders reveals powerful ideas you can apply to your own hiring. For instance: Don't ignore "the jagged résumé"-people whose background appears to teeter on the edge between success and failure. Such people can do spectacular work in the right settings, where their strengths dramatically outweigh their flaws. Look extra hard for "talent that whispers"- the obscure, out-of-the- way candidates who most scouting systems overlook. Be careful with "talent that shouts"-the spectacular but brash candidates who might have trouble with loyalty, motivation, and team spirit. Each field that Anders explores has its own lingo, customs, and history. But the specific stories fit together into a bigger mosaic. In any field, there's an art to clearing away the clutter and focusing on what matters most. It's not necessarily hard, but it requires the courage to take a different approach in pursuit of the rare find.


The Rare Metals War

The Rare Metals War

Author: Guillaume Pitron

Publisher:

Published: 2024-02-27

Total Pages: 0

ISBN-13: 9781761380952

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The resources race is on. Powering our digital lives and green technologies are some of the Earth's most precious metals -- but they are running out. And what will happen when they do? The green-tech revolution has been lauded as the silver bullet to a new world. One that is at last free of oil, pollution, shortages, and cross-border tensions. Now updated after several years of research across a dozen countries, this book cuts across conventional green thinking to probe the hidden, dark side of green technology. By breaking free of fossil fuels, we are in fact setting ourselves up for a new dependence -- on rare metals such as cobalt, gold, and palladium. They are essential to electric vehicles, wind turbines, solar panels, our smartphones, computers, tablets, and other everyday connected objects. China has captured the lion's share of the rare metals industry, but consumers know very little about how they are mined and traded, or their environmental, economic, and geopolitical costs. The Rare Metals Waris a vital exposé of the ticking time-bomb that lies beneath our new technological order. It uncovers the reality of our lavish and ambitious environmental quest that involves risks as formidable as those it seeks to resolve.


Book Synopsis The Rare Metals War by : Guillaume Pitron

Download or read book The Rare Metals War written by Guillaume Pitron and published by . This book was released on 2024-02-27 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The resources race is on. Powering our digital lives and green technologies are some of the Earth's most precious metals -- but they are running out. And what will happen when they do? The green-tech revolution has been lauded as the silver bullet to a new world. One that is at last free of oil, pollution, shortages, and cross-border tensions. Now updated after several years of research across a dozen countries, this book cuts across conventional green thinking to probe the hidden, dark side of green technology. By breaking free of fossil fuels, we are in fact setting ourselves up for a new dependence -- on rare metals such as cobalt, gold, and palladium. They are essential to electric vehicles, wind turbines, solar panels, our smartphones, computers, tablets, and other everyday connected objects. China has captured the lion's share of the rare metals industry, but consumers know very little about how they are mined and traded, or their environmental, economic, and geopolitical costs. The Rare Metals Waris a vital exposé of the ticking time-bomb that lies beneath our new technological order. It uncovers the reality of our lavish and ambitious environmental quest that involves risks as formidable as those it seeks to resolve.