The Sickness Is the System

The Sickness Is the System

Author: Richard D. Wolff

Publisher:

Published: 2020-09-15

Total Pages:

ISBN-13: 9781735601304

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The coronavirus pandemic, the deepening economic crash, dangerously divisive political responses, and exploding social tensions have thrown an already declining American capitalist system into a tailspin. The consequences of these mounting and intertwined crises will shape our future. In this unique collection of essays, Richard D. Wolff argues clearly that "returning to normal" no longer responds adequately to the accumulated problems of US capitalism. What is necessary, instead, is transition toward a new economic system that works for all of us.


Book Synopsis The Sickness Is the System by : Richard D. Wolff

Download or read book The Sickness Is the System written by Richard D. Wolff and published by . This book was released on 2020-09-15 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The coronavirus pandemic, the deepening economic crash, dangerously divisive political responses, and exploding social tensions have thrown an already declining American capitalist system into a tailspin. The consequences of these mounting and intertwined crises will shape our future. In this unique collection of essays, Richard D. Wolff argues clearly that "returning to normal" no longer responds adequately to the accumulated problems of US capitalism. What is necessary, instead, is transition toward a new economic system that works for all of us.


An American Sickness

An American Sickness

Author: Elisabeth Rosenthal

Publisher: Penguin

Published: 2017-04-11

Total Pages: 434

ISBN-13: 0698407180

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A New York Times bestseller/Washington Post Notable Book of 2017/NPR Best Books of 2017/Wall Street Journal Best Books of 2017 "This book will serve as the definitive guide to the past and future of health care in America.”—Siddhartha Mukherjee, Pulitzer Prize-winning author of The Emperor of All Maladies and The Gene At a moment of drastic political upheaval, An American Sickness is a shocking investigation into our dysfunctional healthcare system - and offers practical solutions to its myriad problems. In these troubled times, perhaps no institution has unraveled more quickly and more completely than American medicine. In only a few decades, the medical system has been overrun by organizations seeking to exploit for profit the trust that vulnerable and sick Americans place in their healthcare. Our politicians have proven themselves either unwilling or incapable of reining in the increasingly outrageous costs faced by patients, and market-based solutions only seem to funnel larger and larger sums of our money into the hands of corporations. Impossibly high insurance premiums and inexplicably large bills have become facts of life; fatalism has set in. Very quickly Americans have been made to accept paying more for less. How did things get so bad so fast? Breaking down this monolithic business into the individual industries—the hospitals, doctors, insurance companies, and drug manufacturers—that together constitute our healthcare system, Rosenthal exposes the recent evolution of American medicine as never before. How did healthcare, the caring endeavor, become healthcare, the highly profitable industry? Hospital systems, which are managed by business executives, behave like predatory lenders, hounding patients and seizing their homes. Research charities are in bed with big pharmaceutical companies, which surreptitiously profit from the donations made by working people. Patients receive bills in code, from entrepreneurial doctors they never even saw. The system is in tatters, but we can fight back. Dr. Elisabeth Rosenthal doesn't just explain the symptoms, she diagnoses and treats the disease itself. In clear and practical terms, she spells out exactly how to decode medical doublespeak, avoid the pitfalls of the pharmaceuticals racket, and get the care you and your family deserve. She takes you inside the doctor-patient relationship and to hospital C-suites, explaining step-by-step the workings of a system badly lacking transparency. This is about what we can do, as individual patients, both to navigate the maze that is American healthcare and also to demand far-reaching reform. An American Sickness is the frontline defense against a healthcare system that no longer has our well-being at heart.


Book Synopsis An American Sickness by : Elisabeth Rosenthal

Download or read book An American Sickness written by Elisabeth Rosenthal and published by Penguin. This book was released on 2017-04-11 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times bestseller/Washington Post Notable Book of 2017/NPR Best Books of 2017/Wall Street Journal Best Books of 2017 "This book will serve as the definitive guide to the past and future of health care in America.”—Siddhartha Mukherjee, Pulitzer Prize-winning author of The Emperor of All Maladies and The Gene At a moment of drastic political upheaval, An American Sickness is a shocking investigation into our dysfunctional healthcare system - and offers practical solutions to its myriad problems. In these troubled times, perhaps no institution has unraveled more quickly and more completely than American medicine. In only a few decades, the medical system has been overrun by organizations seeking to exploit for profit the trust that vulnerable and sick Americans place in their healthcare. Our politicians have proven themselves either unwilling or incapable of reining in the increasingly outrageous costs faced by patients, and market-based solutions only seem to funnel larger and larger sums of our money into the hands of corporations. Impossibly high insurance premiums and inexplicably large bills have become facts of life; fatalism has set in. Very quickly Americans have been made to accept paying more for less. How did things get so bad so fast? Breaking down this monolithic business into the individual industries—the hospitals, doctors, insurance companies, and drug manufacturers—that together constitute our healthcare system, Rosenthal exposes the recent evolution of American medicine as never before. How did healthcare, the caring endeavor, become healthcare, the highly profitable industry? Hospital systems, which are managed by business executives, behave like predatory lenders, hounding patients and seizing their homes. Research charities are in bed with big pharmaceutical companies, which surreptitiously profit from the donations made by working people. Patients receive bills in code, from entrepreneurial doctors they never even saw. The system is in tatters, but we can fight back. Dr. Elisabeth Rosenthal doesn't just explain the symptoms, she diagnoses and treats the disease itself. In clear and practical terms, she spells out exactly how to decode medical doublespeak, avoid the pitfalls of the pharmaceuticals racket, and get the care you and your family deserve. She takes you inside the doctor-patient relationship and to hospital C-suites, explaining step-by-step the workings of a system badly lacking transparency. This is about what we can do, as individual patients, both to navigate the maze that is American healthcare and also to demand far-reaching reform. An American Sickness is the frontline defense against a healthcare system that no longer has our well-being at heart.


The Wages of Sickness

The Wages of Sickness

Author: Beatrix Hoffman

Publisher: Univ of North Carolina Press

Published: 2003-06-19

Total Pages: 280

ISBN-13: 0807860727

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The Clinton administration's failed health care reform was not the first attempt to establish government-sponsored medical coverage in the United States. From 1915 to 1920, Progressive reformers led a spirited but ultimately unsuccessful crusade for compulsory health insurance in New York State. Beatrix Hoffman argues that this first health insurance campaign was a crucial moment in the creation of the American welfare state and health care system. Its defeat, she says, gave rise to an uneven and inegalitarian system of medical coverage and helped shape the limits of American social policy for the rest of the century. Hoffman examines each of the major combatants in the battle over compulsory health insurance. While physicians, employers, the insurance industry, and conservative politicians forged a uniquely powerful coalition in opposition to health insurance proposals, she shows, reformers' potential allies within women's organizations and the labor movement were bitterly divided. Against the backdrop of World War I and the Red Scare, opponents of reform denounced government-sponsored health insurance as "un-American" and, in the process, helped fashion a political culture that resists proposals for universal health care and a comprehensive welfare state even today.


Book Synopsis The Wages of Sickness by : Beatrix Hoffman

Download or read book The Wages of Sickness written by Beatrix Hoffman and published by Univ of North Carolina Press. This book was released on 2003-06-19 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Clinton administration's failed health care reform was not the first attempt to establish government-sponsored medical coverage in the United States. From 1915 to 1920, Progressive reformers led a spirited but ultimately unsuccessful crusade for compulsory health insurance in New York State. Beatrix Hoffman argues that this first health insurance campaign was a crucial moment in the creation of the American welfare state and health care system. Its defeat, she says, gave rise to an uneven and inegalitarian system of medical coverage and helped shape the limits of American social policy for the rest of the century. Hoffman examines each of the major combatants in the battle over compulsory health insurance. While physicians, employers, the insurance industry, and conservative politicians forged a uniquely powerful coalition in opposition to health insurance proposals, she shows, reformers' potential allies within women's organizations and the labor movement were bitterly divided. Against the backdrop of World War I and the Red Scare, opponents of reform denounced government-sponsored health insurance as "un-American" and, in the process, helped fashion a political culture that resists proposals for universal health care and a comprehensive welfare state even today.


Democracy at Work

Democracy at Work

Author: Richard Wolff

Publisher: Haymarket Books

Published: 2012-10-02

Total Pages: 221

ISBN-13: 1608462579

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What, and who, are we working for? A thoughtful assessment on our current society from “probably America’s most prominent Marxist economist” (The New York Times). Capitalism as a system has spawned deepening economic crisis alongside its bought-and-paid-for political establishment. Neither serves the needs of our society. Whether it is secure, well-paid, and meaningful jobs or a sustainable relationship with the natural environment that we depend on, our society is not delivering the results people need and deserve. One key cause for this intolerable state of affairs is the lack of genuine democracy in our economy as well as in our politics. The solution requires the institution of genuine economic democracy, starting with workers managing their own workplaces, as the basis for a genuine political democracy. Here Richard D. Wolff lays out a hopeful and concrete vision of how to make that possible, addressing the many people who have concluded economic inequality and politics as usual can no longer be tolerated and are looking for a concrete program of action. “Wolff’s constructive and innovative ideas suggest new and promising foundations for much more authentic democracy and sustainable and equitable development, ideas that can be implemented directly and carried forward. A very valuable contribution in troubled times.” —Noam Chomsky, leading public intellectual and author of Hope and Prospects


Book Synopsis Democracy at Work by : Richard Wolff

Download or read book Democracy at Work written by Richard Wolff and published by Haymarket Books. This book was released on 2012-10-02 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: What, and who, are we working for? A thoughtful assessment on our current society from “probably America’s most prominent Marxist economist” (The New York Times). Capitalism as a system has spawned deepening economic crisis alongside its bought-and-paid-for political establishment. Neither serves the needs of our society. Whether it is secure, well-paid, and meaningful jobs or a sustainable relationship with the natural environment that we depend on, our society is not delivering the results people need and deserve. One key cause for this intolerable state of affairs is the lack of genuine democracy in our economy as well as in our politics. The solution requires the institution of genuine economic democracy, starting with workers managing their own workplaces, as the basis for a genuine political democracy. Here Richard D. Wolff lays out a hopeful and concrete vision of how to make that possible, addressing the many people who have concluded economic inequality and politics as usual can no longer be tolerated and are looking for a concrete program of action. “Wolff’s constructive and innovative ideas suggest new and promising foundations for much more authentic democracy and sustainable and equitable development, ideas that can be implemented directly and carried forward. A very valuable contribution in troubled times.” —Noam Chomsky, leading public intellectual and author of Hope and Prospects


Seeking Sickness

Seeking Sickness

Author: Alan Cassels

Publisher: Greystone Books Ltd

Published: 2012-04-30

Total Pages: 193

ISBN-13: 1771000333

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“Alan Cassels strips layers of expectation, hype, jargon, false-starts, and conflicts of interest off the medical screening mantra.” —Nortin M. Hadler, author of Worried Sick Why wouldn’t you want to be screened to see if you’re at risk for cancer, heart disease, or another potentially lethal condition? After all, better safe than sorry. Right? Not so fast, says Alan Cassels. His Seeking Sickness takes us inside the world of medical screening, where well-meaning practitioners and a profit-motivated industry offer to save our lives by exploiting our fears. He writes that promoters of screening overpromise on its benefits and downplay its harms, which can range from the merely annoying to the life threatening. If you’re facing a screening test for breast or prostate cancer, high cholesterol, or low testosterone, someone is about to turn you into a patient. You need to ask yourself one simple question: Am I ready for all the things that could go wrong? “With engaging clarity backed by academic rigor, Cassels discusses a variety of popular investigational procedures . . . an excellent way to start the important process of self-education.” —Quill & Quire “Smartly written and very readable.” —Brian Goldman, MD, author of The Secret Language of Doctors “Cassels tackles this touchy topic, looking at it test by test. His overarching message is that modern medicine has ‘overpromised’ with claims that screening will save our lives. He contends that with the lack of hard evidence on benefits, the evidence of harm from by such screening, as well as the multi-billion dollar interests at stake, we should approach this kind of screening with great precaution.” —Canadian Women’s Health Network


Book Synopsis Seeking Sickness by : Alan Cassels

Download or read book Seeking Sickness written by Alan Cassels and published by Greystone Books Ltd. This book was released on 2012-04-30 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Alan Cassels strips layers of expectation, hype, jargon, false-starts, and conflicts of interest off the medical screening mantra.” —Nortin M. Hadler, author of Worried Sick Why wouldn’t you want to be screened to see if you’re at risk for cancer, heart disease, or another potentially lethal condition? After all, better safe than sorry. Right? Not so fast, says Alan Cassels. His Seeking Sickness takes us inside the world of medical screening, where well-meaning practitioners and a profit-motivated industry offer to save our lives by exploiting our fears. He writes that promoters of screening overpromise on its benefits and downplay its harms, which can range from the merely annoying to the life threatening. If you’re facing a screening test for breast or prostate cancer, high cholesterol, or low testosterone, someone is about to turn you into a patient. You need to ask yourself one simple question: Am I ready for all the things that could go wrong? “With engaging clarity backed by academic rigor, Cassels discusses a variety of popular investigational procedures . . . an excellent way to start the important process of self-education.” —Quill & Quire “Smartly written and very readable.” —Brian Goldman, MD, author of The Secret Language of Doctors “Cassels tackles this touchy topic, looking at it test by test. His overarching message is that modern medicine has ‘overpromised’ with claims that screening will save our lives. He contends that with the lack of hard evidence on benefits, the evidence of harm from by such screening, as well as the multi-billion dollar interests at stake, we should approach this kind of screening with great precaution.” —Canadian Women’s Health Network


The Far Right Today

The Far Right Today

Author: Cas Mudde

Publisher: John Wiley & Sons

Published: 2019-10-25

Total Pages: 129

ISBN-13: 150953685X

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The far right is back with a vengeance. After several decades at the political margins, far-right politics has again taken center stage. Three of the world’s largest democracies – Brazil, India, and the United States – now have a radical right leader, while far-right parties continue to increase their profile and support within Europe. In this timely book, leading global expert on political extremism Cas Mudde provides a concise overview of the fourth wave of postwar far-right politics, exploring its history, ideology, organization, causes, and consequences, as well as the responses available to civil society, party, and state actors to challenge its ideas and influence. What defines this current far-right renaissance, Mudde argues, is its mainstreaming and normalization within the contemporary political landscape. Challenging orthodox thinking on the relationship between conventional and far-right politics, Mudde offers a complex and insightful picture of one of the key political challenges of our time.


Book Synopsis The Far Right Today by : Cas Mudde

Download or read book The Far Right Today written by Cas Mudde and published by John Wiley & Sons. This book was released on 2019-10-25 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: The far right is back with a vengeance. After several decades at the political margins, far-right politics has again taken center stage. Three of the world’s largest democracies – Brazil, India, and the United States – now have a radical right leader, while far-right parties continue to increase their profile and support within Europe. In this timely book, leading global expert on political extremism Cas Mudde provides a concise overview of the fourth wave of postwar far-right politics, exploring its history, ideology, organization, causes, and consequences, as well as the responses available to civil society, party, and state actors to challenge its ideas and influence. What defines this current far-right renaissance, Mudde argues, is its mainstreaming and normalization within the contemporary political landscape. Challenging orthodox thinking on the relationship between conventional and far-right politics, Mudde offers a complex and insightful picture of one of the key political challenges of our time.


Not Just in Sickness But Also in Health

Not Just in Sickness But Also in Health

Author: Jeff Margolis

Publisher: Forbesbooks

Published: 2021-02-16

Total Pages: 256

ISBN-13: 9781946633897

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MAKE A VOW TO GOOD HEALTH How much time each year do you spend interacting with a doctor, pharmacist, or other clinician? Not much, right? In fact, a vast majority of people spend less than 1 percent of their time--usually far less--in clinical settings or interactions. Furthermore, clinical care affects only 30 percent of our overall health status, so why do we fail to acknowledge the drivers of the other 70 percent? We deserve a healthcare system that systematically supports our daily living needs where we spend over 99 percent of our time as a complement to clinical care. It is our daily living activities related to such things as nutrition, fitness, resiliency, sleep, relationships, finances, and purpose--as impacted by social determinants--that make up the vast majority of what determines our total well-being. Not Just in Sickness but Also in Health details how we can create the next generation of benefit plans, including an intelligent ecosystem of personalized resources, capable of supporting how each person can achieve and sustain their optimal health. Drawing on his decades of experience, Margolis explains how existing healthcare industry players, government policymakers, and technology companies can enact a systematic healthcare consumer-centric approach to accomplish these aims, and move the United States and the world from a system of sickcare to one of health optimization for all.


Book Synopsis Not Just in Sickness But Also in Health by : Jeff Margolis

Download or read book Not Just in Sickness But Also in Health written by Jeff Margolis and published by Forbesbooks. This book was released on 2021-02-16 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: MAKE A VOW TO GOOD HEALTH How much time each year do you spend interacting with a doctor, pharmacist, or other clinician? Not much, right? In fact, a vast majority of people spend less than 1 percent of their time--usually far less--in clinical settings or interactions. Furthermore, clinical care affects only 30 percent of our overall health status, so why do we fail to acknowledge the drivers of the other 70 percent? We deserve a healthcare system that systematically supports our daily living needs where we spend over 99 percent of our time as a complement to clinical care. It is our daily living activities related to such things as nutrition, fitness, resiliency, sleep, relationships, finances, and purpose--as impacted by social determinants--that make up the vast majority of what determines our total well-being. Not Just in Sickness but Also in Health details how we can create the next generation of benefit plans, including an intelligent ecosystem of personalized resources, capable of supporting how each person can achieve and sustain their optimal health. Drawing on his decades of experience, Margolis explains how existing healthcare industry players, government policymakers, and technology companies can enact a systematic healthcare consumer-centric approach to accomplish these aims, and move the United States and the world from a system of sickcare to one of health optimization for all.


Body Matters

Body Matters

Author: James Aho

Publisher: Lexington Books

Published: 2008-06-19

Total Pages: 207

ISBN-13: 0739138219

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Following the core principle of phenomenology as a return 'to the things themselves,' Body Matters attends to the phenomena of bodily afflictions and examines them from three different standpoints: from society in general that interprets them as 'sicknesses,' from the medical professions that interpret them as 'diseases,' and from the patients themselves who interpret them as 'illnesses.' By drawing on a crucial distinction in German phenomenology between two senses of the body_the quantifiable, material body (Ksrper) and the lived-body(Leib)_the authors explore the ways in which sickness, disease, and illness are socially and historically experienced and constructed. To make their case, they draw on examples from a multiplicity of disciplines and cultures as well as a number of cases from Euro-American history. The intent is to unsettle taken-for-granted assumptions that readers may have about body troubles. These are assumptions widely held as well by medical and allied health professionals, in addition to many sociologists and philosophers of health and illness. To this end, Body Matters does not simply deconstruct prejudices of mainstream biomedicine; it also constructively envisions more humane and artful forms of therapy.


Book Synopsis Body Matters by : James Aho

Download or read book Body Matters written by James Aho and published by Lexington Books. This book was released on 2008-06-19 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Following the core principle of phenomenology as a return 'to the things themselves,' Body Matters attends to the phenomena of bodily afflictions and examines them from three different standpoints: from society in general that interprets them as 'sicknesses,' from the medical professions that interpret them as 'diseases,' and from the patients themselves who interpret them as 'illnesses.' By drawing on a crucial distinction in German phenomenology between two senses of the body_the quantifiable, material body (Ksrper) and the lived-body(Leib)_the authors explore the ways in which sickness, disease, and illness are socially and historically experienced and constructed. To make their case, they draw on examples from a multiplicity of disciplines and cultures as well as a number of cases from Euro-American history. The intent is to unsettle taken-for-granted assumptions that readers may have about body troubles. These are assumptions widely held as well by medical and allied health professionals, in addition to many sociologists and philosophers of health and illness. To this end, Body Matters does not simply deconstruct prejudices of mainstream biomedicine; it also constructively envisions more humane and artful forms of therapy.


The Price We Pay

The Price We Pay

Author: Marty Makary

Publisher: Bloomsbury Publishing USA

Published: 2019-09-10

Total Pages: 305

ISBN-13: 1635574129

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New York Times bestseller Business Book of the Year--Association of Business Journalists From the New York Times bestselling author comes an eye-opening, urgent look at America's broken health care system--and the people who are saving it--now with a new Afterword by the author. "A must-read for every American." --Steve Forbes, editor-in-chief, FORBES One in five Americans now has medical debt in collections and rising health care costs today threaten every small business in America. Dr. Makary, one of the nation's leading health care experts, travels across America and details why health care has become a bubble. Drawing from on-the-ground stories, his research, and his own experience, The Price We Pay paints a vivid picture of the business of medicine and its elusive money games in need of a serious shake-up. Dr. Makary shows how so much of health care spending goes to things that have nothing to do with health and what you can do about it. Dr. Makary challenges the medical establishment to remember medicine's noble heritage of caring for people when they are vulnerable. The Price We Pay offers a road map for everyday Americans and business leaders to get a better deal on their health care, and profiles the disruptors who are innovating medical care. The movement to restore medicine to its mission, Makary argues, is alive and well--a mission that can rebuild the public trust and save our country from the crushing cost of health care.


Book Synopsis The Price We Pay by : Marty Makary

Download or read book The Price We Pay written by Marty Makary and published by Bloomsbury Publishing USA. This book was released on 2019-09-10 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: New York Times bestseller Business Book of the Year--Association of Business Journalists From the New York Times bestselling author comes an eye-opening, urgent look at America's broken health care system--and the people who are saving it--now with a new Afterword by the author. "A must-read for every American." --Steve Forbes, editor-in-chief, FORBES One in five Americans now has medical debt in collections and rising health care costs today threaten every small business in America. Dr. Makary, one of the nation's leading health care experts, travels across America and details why health care has become a bubble. Drawing from on-the-ground stories, his research, and his own experience, The Price We Pay paints a vivid picture of the business of medicine and its elusive money games in need of a serious shake-up. Dr. Makary shows how so much of health care spending goes to things that have nothing to do with health and what you can do about it. Dr. Makary challenges the medical establishment to remember medicine's noble heritage of caring for people when they are vulnerable. The Price We Pay offers a road map for everyday Americans and business leaders to get a better deal on their health care, and profiles the disruptors who are innovating medical care. The movement to restore medicine to its mission, Makary argues, is alive and well--a mission that can rebuild the public trust and save our country from the crushing cost of health care.


In Sickness and in Health

In Sickness and in Health

Author: Ben Mattlin

Publisher: Beacon Press

Published: 2018-01-30

Total Pages: 258

ISBN-13: 0807058548

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A frank, humorous exploration of interabled dating, love, and marriage Ben Mattlin’s wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an “inspiring” story of how a man born with spinal muscular atrophy—a congenital and incurable neuromuscular condition—survived childhood, graduated from Harvard, married an able-bodied woman, built a family with two daughters and a cat and a turtle, established a successful career in journalism, and lived happily ever after. As Mattlin considers the many times his relationship has been met with surprise or speculation by outsiders—those who consider his wife a “saint” or him just plain “lucky” for finding love—he issues a challenge to readers: why should the idea of an “interabled” couple be regarded as either tragic or noble? Through conversations with more than a dozen other couples of varying abilities, ethnic backgrounds, and orientations, Mattlin sets out to understand whether these pairings are as unusual as onlookers seem to think. Reflecting on his own experience he wonders: How do people balance the stresses of personal-care help with the thrill of romance? Is it possible that the very things that appear to be insurmountable obstacles to a successful relationship—the financial burdens, the physical differences, the added element of an especially uncertain future—could be the building blocks of an enviable level of intimacy and communication that other couples could only dream of? We meet Shane Burcaw, a twenty-three-year-old writer, who offers a glimpse of his first forays into dating with a disability. There’s Rachelle Friedman, the “paralyzed bride,” as the media refers to her, and her husband, discussing the joys and challenges of a new marriage and a growing family. And Christina Crosby and her partner, Janet Jakobsen, reflect on how Crosby’s disabling accident called for them to renegotiate their roles and expectations in their long-term relationship. What emerges is a candid glimpse into the challenges and joys of interabled love—from the first blush of sexual awakening to commitment and marriage and through to widowhood.


Book Synopsis In Sickness and in Health by : Ben Mattlin

Download or read book In Sickness and in Health written by Ben Mattlin and published by Beacon Press. This book was released on 2018-01-30 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: A frank, humorous exploration of interabled dating, love, and marriage Ben Mattlin’s wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an “inspiring” story of how a man born with spinal muscular atrophy—a congenital and incurable neuromuscular condition—survived childhood, graduated from Harvard, married an able-bodied woman, built a family with two daughters and a cat and a turtle, established a successful career in journalism, and lived happily ever after. As Mattlin considers the many times his relationship has been met with surprise or speculation by outsiders—those who consider his wife a “saint” or him just plain “lucky” for finding love—he issues a challenge to readers: why should the idea of an “interabled” couple be regarded as either tragic or noble? Through conversations with more than a dozen other couples of varying abilities, ethnic backgrounds, and orientations, Mattlin sets out to understand whether these pairings are as unusual as onlookers seem to think. Reflecting on his own experience he wonders: How do people balance the stresses of personal-care help with the thrill of romance? Is it possible that the very things that appear to be insurmountable obstacles to a successful relationship—the financial burdens, the physical differences, the added element of an especially uncertain future—could be the building blocks of an enviable level of intimacy and communication that other couples could only dream of? We meet Shane Burcaw, a twenty-three-year-old writer, who offers a glimpse of his first forays into dating with a disability. There’s Rachelle Friedman, the “paralyzed bride,” as the media refers to her, and her husband, discussing the joys and challenges of a new marriage and a growing family. And Christina Crosby and her partner, Janet Jakobsen, reflect on how Crosby’s disabling accident called for them to renegotiate their roles and expectations in their long-term relationship. What emerges is a candid glimpse into the challenges and joys of interabled love—from the first blush of sexual awakening to commitment and marriage and through to widowhood.